Jantina De Vries

Biography

Jantina de Vries is an Associate Professor in Bioethics at the Department of Medicine of the University of Cape Town. Her work focuses on developing ethical best practice for genomics research and biobanking in Africa. Amongst others, she has contributed to developing an evidence base for best practice in informed consent for African genomics research, investigating ethical challenges relating to the sharing of African samples and data, exploring what constitutes fairness in African genomics research collaborations, and studying how genomic research may impact on stigma relating to disease. A second and equally important output relates to the translation of her work into forward-looking policies and best practice guidelines that are used in the regulation of genomics research in Africa.

Jantina obtained her DPhil through The Ethox Centre at the University of Oxford (2011), and an MSc degree in sociology at Wageningen University (2003). She was at the European University Institute between 2003-2004. Jantina co-directs the IFGENERA H3Africa ELSI Collaborative Centre and is the PI on an H3Africa grant exploring the relation between stigma and genetic attribution. She is a member of the Human Cell Atlas Ethics Working Group, of the P3G Board of Directors, the WWARN Data Access Committee, as well as a member of Advisory Boards for several ongoing genomics research projects.