The publication of the "WHO Guidance for human genome data collection, access, use and sharing" in November 2024 marks a major milestone in advancing ethical standards for genomic data globally. For the first time, a comprehensive set of principles has been established to ensure respect for individual rights, promote equity, and foster collaboration.
This webinar provides a unique opportunity to hear directly from WHO experts and global leaders about the guidance and its practical implications for research, policy, and healthcare systems.
Key Areas of Focus:
- Promoting equitable access to genomic technologies and data.
- Embedding ethical considerations into research and public health.
- Simplifying data-sharing while ensuring privacy.
- Strengthening the role of genomics in health systems.
- Building global collaboration for ethical genomic research.
Target Audience:
This event is designed for a wide range of stakeholders, including:
- Policymakers: Government agencies, regulatory bodies, and international organizations responsible for health policies and genomic data governance, including WHO.
- Healthcare and Research Institutions: Leaders and administrators involved in integrating genomics into healthcare systems and research frameworks.
- Researchers: Academics and industry professionals engaged in genomic data collection, sharing, and analysis.
- Ethicists: Experts dedicated to addressing ethical challenges in genomic data governance and its applications.
- Advocacy Groups and Civil Society: Organizations and advocates promoting equity and ethical practices in health and genomics.
- Funders: Public and private organizations supporting genomics research and initiatives.
This broad audience ensures an inclusive dialogue, fostering collaboration to address challenges and opportunities in genomic data governance globally.
Objectives:
- Understand WHO’s principles for advancing ethical genomic data sharing.
- Explore how stakeholders can align practices with the guidance.
- Discuss integrating genomics into health systems.
- Share strategies for addressing challenges in data sharing.
Don’t miss this chance to engage with WHO and global experts on shaping the future of ethical genomic data sharing!