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Members of the Global Diabetes Compact Forum

The Global Diabetes Compact Forum (the Forum) was created by WHO to share and disseminate ideas, information and views that help advocate for the vision the WHO Global Diabetes Compact, namely: a world where the risk of diabetes is reduced and where all people who are diagnosed with diabetes have access to equitable, comprehensive, affordable and quality treatment and care.

Collaboration and cooperation between Forum members and WHO are key purposes of the Forum. Within the Forum, ideas, information, and views can be exchanged between WHO and members, as well between members.

Below are the current members of the Forum, their websites and information about their mission and a description of their work as has been provided by the members.

List of current members

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

A

Abaseen Institute of Medical Sciences, USA

Website: https://abaseen.org

Mission

Abaseen Institute of Medical Sciences (USA) United States of America is a non-profit organization dedicated to providing free health care and treatment to the impoverished living in Pakistan.

Description of work

Hospital care, education and awareness, children’s support and treating patients in villages.

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All India Institute of Diabetes and Research Institute

Websites:  https://stopdiabetesindia.org/ and  https://www.swasthyaindia.com/

Mission

Our mission is excellence in clinical care, education, research and community health.

Description of work

The All India Institute of Diabetes and Research is a nongovernmental organization located in the western part of India which works with a mission of excellence in:

1. Clinical care: OPD/IPD counselling; screening for micro- and macro-vascular complications along with managing diabetes and its complications.

Education: patient education is an important part of diabetes management.

The diabetes education programme is conducted in which the patient, their relatives and their team of health care workers are given an education covering basic concepts of diabetes, newer advances in management and how one can keep proper glycaemic control.

We have the Lifestyle Modification department which counsels patients and their relatives on how to eat, what to eat and when to eat. Diet and exercise are tailored to patients’ lifestyles which helps in management of diabetes. The All India Institute of Diabetes and Research has a fellowship programme for doctors approved by Gujarat University for 2 years in which doctors are specifically trained for management of diabetes and its complications.

We do have a certificate programme for health care providers, educators, nurses and primary care providers as well as consultants.

Every year in the first week of January we hold an international conference of metabolic diseases known as SwasthyaCON (https://www.swasthyacon.org/). The theme of SwasthyaCON 2022 was “Team Approach – The New Reality”.

2. Research: the All India Institute of Diabetes and Research Institute is conducting regular research based on community and epidemiology which is evidence-based and helps in improving the management of diabetes. Phases III and IV clinical trials are conducted with proper guidelines under a regular ethics committee review.

3. Community care: being in the western part of India, access to diabetes management resources is limited. We work in the community with different projects:

  • Stop diabetes
  • Conquer diabetes
  • Make my life – type 1 diabetes project Shravan – save a leg
  • Diabetrona – COVID-19 with diabetes awareness drive.
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All India Institute of Medical Sciences

Website: https://aiimsgorakhpur.edu.in/

Mission

Research, teaching, health services.

Description of work

The Department of Community and Family Medicine, All India Institute of Medical Sciences, Gorakhpur deals with health promotion, prevention, curative and rehabilitation services of diabetes and other noncommunicable diseases.

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Associação de Diabetes Juvenil (ADJ – Diabetes Brasil), Brazil

Website: https://adj.org.br/

Mission

To advocate for, defend social rights, inform and educate people with diabetes, family members and health workers, prioritizing those in social vulnerability, to guarantee access to quality care, prevent complications and favour quality of life.

Description of work

ADJ Diabetes Brasil was founded in 1980 by a group of parents of children and adolescents with diabetes, who understood the importance of diabetes education as a way to allow their children to be healthy and have their short- and long-term quality of life preserved. It is a nongovernmental, non-profit organization that focuses its activities on the awareness and education of people with (and without) diabetes, training health professionals and advocating for better health and social programmes and policies, as well as defending social rights of the Brazilian people.

During its 41 years of existence, ADJ became the largest diabetes association in the country, with 30+ other associations affiliated to it, and a reference in health and social transformation in Brazil, through its partnerships with the different sectors and as a full member of municipal, state and federal level committees and working groups representing the civil society before the public sector.

ADJ has always joined efforts with international organizations, serving as a reference in the Latin American Region. Still in the 1980s ADJ joined the Juvenile Diabetes Research Foundation (JDRF), with whom ADJ currently has an active MoU, and later, in the 1990s it joined the International Diabetes Federation (IDF), the largest global diabetes entity, where ADJ is a key partner with strategic roles (such as co-developing and testing the worldwide successful package KiDS).

 

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Associação Protectora dos Diabéticos de Portugal (APDP)

Website: https://www.apdp.pt

Mission

APDP-Diabetes Portugal is a non-profit organization and dean of IDF’s Member Associations. It is currently an international reference as a diabetes health care centre. It is the first IDF Centre of Education (in 2009) and is a Certified Centre of Reference of Pediatric Diabetes (SWEET).

Main areas of activity:

  • Social: Fighting for the rights of people with diabetes.
  • Clinical: Providing multispecialized health care services to more than 100 000 people with diabetes.
  • Training courses aimed at HCPs (physicians, nurses, dieticians); professionals of communitarian support institutions; university students and patients and their families.
  • Research: In basic and clinical science and epidemiology; It collaborates with Gulbenkian Science Institute, Medical Sciences Universities and Portuguese Cancer Institute.
  • Intervention community projects for diabetes prevention, promotion of health and disease management.
  • International collaboration: IDF, Euradia, IMAGE, Chrodis, EURODIAB and DIRECT.
  • Participation in quality assurance – member of the SWEET international Network for Pediatric Diabetes
  • Collaboration with the Portuguese Government: Scientific consultancy in diabetes; implementation of the Portuguese Program for Diabetes; technical standards in the area of diabetes; postgraduate training.

Description of work

APDP works in 5 main activities:

  • Social: Fighting for the rights of people with diabetes.
  • Clinical: Providing multispecialized health care services to more than 100 000 people with diabetes.
  • Training courses aimed at HCPs (physicians, nurses, dieticians); professionals of communitarian support institutions; university students and patients and their families.
  • Research: in basic and clinical science and epidemiology; It collaborates with Gulbenkian Science Institute, Medical Sciences Universities and Portuguese Cancer Institute.
  • Intervention community projects for diabetes prevention, health promotion and disease management.
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Association de diabétique de la wilaya d'Alger, Algeria

Website: N/A

Mission

Our mission is to raise awareness, provide support, advocate for people living with diabetes and give them advice on how to avoid diabetes complications.

Description of work

N/A

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Association Diabaction Congo

Website: https://maisonbleuedudiabete.org/site/

Mission

Optimize the care of people suffering from diabetes or exposed to the risk of the disease; through effective intervention in prevention, control and research applied to diabetes.

Description of work

The organization conducts online trainings including E-Diabetes Program, E-Pediatrics Programs, and physical trainings of peer educators on childhood diabetes and for midwives on gestational diabetes. Current projects include Diabetes and COVID-19 Action Plan, E-Retinodiab Congo Project, Live Tele-Ultrasound Project and Project for the Care of Children and Adolescents with Diabetes.

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Association for the Care of Diabetes in Argentina (CUI.D.AR)

Website: https://cuidar.org/

Mission

Minimize the impact of diabetes on the lives of people living with this chronic condition.

Description of work

CUI.D.AR develops educational and informative activities, of containment, support and defence of rights. Its intervention has an impact on the quality of treatment, education, better access to better care and on the general well-being of the person living with diabetes and that of their family.

It also creates social awareness and works hard on advocacy actions and incidence on public policies. CUI.D.AR has its own Bank of Insulin and Supplies that allows us to provide periodic and sustained support to public hospitals, paediatric hospitals and health centres.

CUI.D.AR develops its work in 4 well-defined work areas (research, access, communication/campaigns, patient activation), each of which has different programmes, activities and services that respond to the needs of prevention, care, treatment, education, access and the defence of the rights of people with diabetes.

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Association of Endocrinologists and Diabetologists in Bosnia and Herzegovina

Website: N/A

Mission

No information provided.

Description of work

  • Organizes all specialists in endocrinology and diabetes in order to raise the level of professional knowledge.
  • Creates programmes, organizes professional meetings, symposia, seminars, congresses, and other types of education.
  • Initiates health actions, informs the public about its problems and informs the competent authorities.
  • Informs the public about its problems and informs the competent authorities.
  • Publishes informative publications, brochures, books and leaflets for the purpose of achieving the goals and activities of the Association, in accordance with the Law.
  • Organizes workshops, seminars, conferences, promotions, campaigns and other events related to the goals of the association, for the needs of membership.
  • Realizes cooperation with other related Associations in the country and abroad in accordance with the Law.
  • Realizes other common interests of the members of the Association, in accordance with the Statute and other acts of the Association.
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Association pour le Soutien des Personnes Diabeteiques

Website: N/A

Mission

Defence of the right of access of diabetics to quality care and the fight against discrimination linked to their illness, support for improving the quality of life of people suffering from diabetes, information and prevention in diabetes.

Description of work

N/A

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Association Suisse Aide aux Personnes Diabétiques en Guinée-Bissau, Switzerland

Website: https://aide-diabete-guineebissau.ch/

Mission

The Swiss Association for Diabetic People in Guinea-Bissau (Association Suisse Aide aux Personnes Diabétiques en Guinée-Bissau – AAPDGB) helps the people of Guinea-Bissau affected by diabetes and hypertension who do not have access to treatment. We work to raise awareness, prevent and screen for the different types of diabetes, particularly among women and children, in order to reduce amputation and mortality rates. We provide medications, medical equipment and tools free of charge. We also build the capacity of local health care professionals to treat diabetic patients in Guinea-Bissau.

Description of work

One of AAPDGB’s first and biggest ongoing projects is the establishment of a new medical unit specialized in diabetes. To cover the needs of diabetic patients and to enable specialist support, AAPDGB regularly ships medications and medical equipment from Switzerland and Portugal to Guinea-Bissau and offer free screenings during awareness and prevention campaigns, as well as hospital and home visits. AAPDGB also organizes workshops involving the population to explain and prevent the disease.

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B

Bangladesh Non-Communicable Diseases Forum

Website:  https://bncdf.org/

Mission

To conceive, endorse, propagate and paraphrase the interface of evidence to practice in terms of ensuring health justice for NCDs.

Description of work

A dedicated platform advocating for better NCDs care in Bangladesh.

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Beta Cell Foundation, USA

Website:  https://www.betacellfoundation.org

Mission

The Beta Cell Foundation fosters and funds grassroots projects developed by individuals living with type 1 diabetes to educate, empower, and unite our community.

Description of work

The Beta Cell Foundation funds and supports grassroots projects developed and run by people living with diabetes to help educate and empower others in the community. We host a public calendar of T1D meetups (local and virtual) for people to find community; we have management and advocacy resources written by people with T1D and informed by surveys (including one on COVID-19 vaccine side effects that has been well cited); we host free webinars with T1D health care professionals; and we are developing three mobile apps: a social network to help people find local communities, a daily journal to help mental well-being, and an interactive diabetes simulator.

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Beyond Type 1, USA

Website:  http://beyondtype1.org

Mission

Beyond Type 1 spreads awareness about diabetes and provides the tools and resources people need to discover, understand, and better manage this chronic disease. We help people survive by recognizing the signs of diabetes. We help them thrive — to not only coexist with the disease, but learn to live their best lives. By driving innovation, funding, and new solutions, we help the world drive toward a cure.

Description of work

Through platforms, programs, resources and grants, Beyond Type 1 is uniting the global diabetes community and providing solutions to improve lives today.

Founded in 2015 with a focus on education, advocacy and the pathway to cures for type 1 diabetes, Beyond Type 1 has grown to also include programs for those with type 2 diabetes. A new model of philanthropy, Beyond Type 1 aims to change what it means to live with chronic illness.

By educating the global community and providing resources and support for those impacted by all types of diabetes, Beyond Type 1 is bridging the gap from diagnosis to cure, empowering people to live well today and funding a better tomorrow.

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Blue Circle Diabetes Foundation, India

Website: https://www.bluecircle.foundation/

Mission

To educate, engage and empower people living with all types of diabetes (in India).

Description of work

Blue Circle Diabetes Foundation is a volunteer-led, registered non-profit organization that works in diabetes awareness and advocacy across India. It is the largest patient-led diabetes community and support group in India that welcomes people with type 1 diabetes, type 2 diabetes, gestational diabetes, etc. We are a 12A and 80G certified NGO.

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C

Center for Integration Science in Global Health Equity, United States of America

Website: https://centerforintegrationscience.org/

Mission

The Center for Integration Science (CIS) is a joint initiative of the Program in Global Noncommunicable Disease and Social Change at Harvard Medical School, the NCD Synergies project at Partners In Health, and the Fellowships in NCDs and Global Health Equity at BWH. One integrated delivery model developed by CIS leadership is the Package of Essential Noncommunicable Disease Interventions – Plus (PEN-Plus). PEN-Plus supports decentralized, integrated case-management for severe chronic NCDs such as type 1 diabetes, rheumatic and congenital heart disease and sickle cell disease. PEN-Plus has been adopted as the official strategy of the 47 member states of the World Health Organization’s African Region.

Much of the historical progress on global health equity has been driven by vertical initiatives around priority infectious diseases. In the 21st century, however, there remains a “long tail” of infectious and non-infectious conditions that are seldom lethal in high-income countries, but are still a death-sentence for the poorest children and young adults in lower-income countries. This long tail of severe conditions includes diseases such as type 1 diabetes, rheumatic heart disease, sickle cell disease, and multi-drug resistant tuberculosis for example.

Our mission is to accelerate the just redistribution of resources in the interest of global health equity by identifying integrated units of operational effectiveness in health care delivery and scaling their implementation through collective action.

Between 2023 and 2028, the primary objectives of the CIS will be to:

  • Develop the theoretical basis for a Science of Integration in Global Health Equity.
  • Support all phases of the NCDI Poverty Network’s activities, including PEN-Plus initiation, expansion, and evaluation.
  • Incubate new integrated service delivery models in areas such as breast and gynecological health, newborn screening, and high-dependency/acute care.

Description of work

The Center for Integration Science in Global Health Equity, which serves as co-secretariat for the NCDI Poverty Network in collaboration with the Universidade Eduardo Mondlane in Mozambique, concentrates on five areas of work – Research, Policy, Training, Implementation, and Advocacy.

  1. Policy – The Center for Integration Science policy team works closely with national NCDI Poverty Commissions – comprised of Ministry policy-makers, clinicians, academic researchers, health planning and financing experts, implementing partners and donors, and people living with severe conditions – to develop policies that prioritize equitable, cost-effective interventions to address severe conditions that disproportionately affect children and young adults living in extreme poverty.
  2. Implementation – The Center for Integration Science programs team supports ministries of health and implementing partners in lower-income countries with developing the plans, budgets, facilities, training and mentorship programs, and systems for procurement, supply chain management, and monitoring and evaluation needed to decentralize and integrate delivery of care for severe conditions that cause avoidable death and suffering among the world’s poorest children and young adults.
  3. Training – The Center for Integration Science training team, working in collaboration with partners in lower-income countries and subject matter experts from clinical, academic, and policy institutions across the NCDI Poverty Network, provides support to implementing partners and countries on developing training programs for nurses, clinical officers, and other mid-level providers delivering decentralized, integrated care by developing curricula, opensource training materials, and an e-learning platform.
  4. Research – The Center for Integration Science research team works with partners and collaborators in lower-income countries and in regional and global institutions in applying integration science to inform the design, implementation, evaluation, and scale-up of models for decentralizing services progressively and integrating those services to optimize both health system resources and patient outcomes and well-being.
  5. Advocacy – The Center for Integration Science Advocacy and Communications teams work to raise awareness of the need to prioritize access to care for severe conditions that disproportionately affect the world’s poorest children and young adults, to amplify the voices of people living with these severe conditions, and to mobilize a global campaign of solidarity to address these conditions as both a moral imperative and a key to achieving universal health coverage.
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Centre for Chronic Disease Control

Website: N/A

Mission

No information provided.

Description of work

No information provided.

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Centre for Health Promotion and Integrated Development, Uganda

Website: https://www.chaid.org

Mission

To increase the quality, availability, and effectiveness of health promotion programmes designed to prevent noncommunicable diseases (NCDs) and for people affected by NCDs in Uganda.

Description of work

The organization is currently the leading advocate for diabetes prevention programmes that use lifestyle interventions in the target communities through awareness outreach strategies and education in schools and communities to promote risk reduction. We also conduct diabetes screening camps in rural, underserved areas.

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Citizen News Service

Website: https://www.citizen-news.org/

Mission

We work towards enhancing visibility of neglected issues related to development justice, in particular, health and gender, by documenting voices of key affected populations, among other constituencies, in our rights- and evidence-based thematic news coverage and syndicating these news feature articles to a range of print, online and social media advocating and campaigning for policy, programmatic and social changes to achieve development justice for all.

Description of work

No information provided.

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City Health Group Limited, Uganda

Website: https://www.citizen-news.org/

Mission

To contribute to the prevention and control of Diabetes and Hypertension in Uganda

Description of work

No information provided.

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Codix Charity Foundation, Nigeria

Website: https://codixpharma.com/codix-foundation/

Mission

Codix Foundation, was established in 2022 to manage Corporate Social Responsibility initiatives for Codix Pharma Limited. We are committed to investing 1%–2% of our annual revenue to support and fund, but not limited to, health care projects. Our commitment translates into a set of actions to make a positive impact in improving the health of the nation, one community at a time.

Description of work

In past years, the company has been committed to CSR through its marketing department and philanthropy has been an integral part of our approach to improving access to quality and innovative health care solutions, especially within underserved populations. This has been done through organizations such as Diabetes Association of Nigeria (DAN), Atinuke Cancer Foundation, Livewell Initiative, Thyroidism Awareness Initiative, Headfort Foundation, Rotary Club, Inner Wheel Club, Give Hope to Kidney Foundation and The Collectives Health Week.

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D

Deakin University – The Global Obesity Centre, Australia

Website: https://globalobesity.com.au/

Mission

To catalyse improvements in population health, with a focus on obesity, through innovative research that empowers people and enables healthier environments.

Description of work

  • Conduct innovative population-level research on obesity prevention.
  • Advocate for evidence-based population health and obesity prevention policy.
  • Strengthen the skills of communities, professionals and academics in the science of obesity prevention through the life-course.
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#dedoc° Diabetes Online Community, Germany

Website: https://www.dedoc.org

Mission

#dedoc° is an international community by and for people with diabetes. We believe in the core principles of peer support and the Diabetes Online Community: #NothingAboutUsWithoutUs #WeAreNotWaiting #PayItForward.

Description of work

#dedoc° believes in the value diabetes advocates bring to scientific congresses. This is why we have created the #dedoc° voices scholarship program. The #dedoc° voices scholarship program grants diabetes advocates access to some of the world’s most renowned scientific conferences. It ensures the presence of the voice of people with diabetes, empowers a new generation of advocates and provides a dedicated platform for people with diabetes, health care providers and industry leaders to meet and exchange. #dedoc° voices are powerful advocates who have proven themselves in the field of advocacy and have a strong presence on social media and in the Diabetes Online Community. They join scientific sessions and industry symposia to curate, translate and share their learnings with the community in a way that is appreciated by PWD around the world. Their social media presence creates value for conference organizers, partners, and the global diabetes community alike. Since 2020, #dedoc° has awarded more than 150 scholarships to outstanding diabetes advocates from more than 40 countries. Successful applicants join a powerful network of like-minded peers who mentor and support each other’s advocacy work. Participation at any given conference can be virtual or in-person. The #dedoc° voices are a vibrant community of people living with diabetes committed to #PayItForward.

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Diabaction Congo, Democratic Republic of the Congo

Website: N/A

Mission

Ensuring the prevention and treatment of diabetes in solidarity.

Description of work

  • Creation of centres across the country for primary and secondary prevention of diabetes, diabetes counselling, education and training, provision of medicines.
  • Performing advanced specialized medical consultations.
  • Screening for diabetes in urban and rural areas.
  • Creation and promotion of physical activity (walking, cycling).
  • Monitoring of people at risk for diabetes.
  • Lecture and discussion on a range of topics such as nutrition, complications of diabetes, obesity prevention.
  • Training of diabetes educators (using Conversation Maps).
  • Regular production of therapeutic education group sessions (Conversation Maps).
  • Awareness of diabetes at school.
  • Creation of “Diabetes Village” at Square de Gaulle in Brazzaville.
  • Creation of a Health Caravan.
  • Implementation of various projects on diabetes and children.
  • Establishment of summer camps for children with diabetes.
  • Establishment of a specialised diabetes education section (Blue Hall) in the Department of Metabolic Diseases BUH Brazzaville.
  • Training of midwives on gestational diabetes.
  • Training of diabetes health workers to strengthen the capacity of health centres.
  • Creation of a registry for epidemiological surveillance of diabetes.
  • Celebration of World Diabetes Day.
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Diabesties Foundation, India

Website: http://diabesties.foundation/

Mission

The Diabesties Foundation is a not-for-profit organization dedicated to serving the health care sector. We are actively involved in creating diabetes awareness and spreading type 1 diabetes education to the Indian society at large. We believe that health care is a fundamental right as well as duty of every Indian. From health care providers to family, friends and relatives, our mission is to cater to all the stakeholders involved in this journey. We also work predominantly for awareness, advocacy and access. Diabesties is a movement dedicated to making every individual living with type 1 diabetes, feel heard, understood, supported, loved and celebrated.

Description of work

Our projects are under three wide categories: awareness/access, education and support. We believe that access to quality diabetes education is equally important to access to care. n India, we face unique challenges that make living with type 1 diabetes, slightly more challenging. Right from disturbing myths and taboos to false promises of cures, from misdiagnosis to lack of access to insulin – we have witnessed heart-breaking stories of people living with this condition. We do not have a 360-degree type 1 diabetes support system in our country, as our health sector is already overburdened – people with T1D often have to figure out the technicalities about their condition by themselves and failing to do so, sometimes results in unfavourable situations. We want to bridge the gap between the doctors and the people living with T1D – by making education a fundamental part of diabetes management.

In the times of COVID-19 – data suggests that those with T1D fall under a vulnerable risk group – and we have tried to persist through the pandemic by offering educational, mental and social support. We also have been actively working with national bodies such as RSSDI, Diabetes India and the NHS to provide factual data, insulin, and support to those in the rural sectors.

A few selected projects:

  1. DiaMeet: While living with a chronic condition, one of the most important aspects of a healthy mind is peer support. Therefore, DiaMEETS are our peer support parties – where T1Ds and their families celebrate living with this condition, with games, conversations and lots of dancing! Questions are answered from lived experiences and it’s a beautiful showcase of support and camaraderie. (https: https://www.youtube.com/watch?v=9ztceNMYkRw.youtube.com/watch?v=9ztceNMYkRw).
  2. DTour: a national school programme focused on spreading awareness about diabetes, the difference in the types, and discuss stigmas and taboos.
  3. One Drive: Sugar-testing camp in schools and NGOs (https://www.youtube.com/watch?v=GMw68tKjelQ&t=6s://www.youtube.com/watch?v=GMw68tKjelQ&t=6s).
  4. Mishti: Pledge Insulin, Gift A Life: Our goal is to ensure that no child in India should die or face complications due to the lack of insulin and education (https://www. https://www.youtube.com/watch?v=IYHtJwHAvUI.com/watch?v=IYHtJwHAvUI ).
  5. Kiran: Project Kiran understands the importance of diabetes education being fundamental to one’s quality of life. We also understand that not all children learn alike. Kiran has several modules, games, instructions, manuals, and lesson plans to cater to every child’s learning needs and ensure quality education (https://www://www https://www.d1abesties.com/kiran.d1abesties.com/kiran ).
  6. T1D Comic: We believe in making T1D education fun and engaging. Our comic series discusses important aspects of T1D management with colourful illustrations, humour, and relatable stories (https: https://www.d1abesties.com/comic.d1abesties.com/comic).
  7. DiaBIKE: a community project to explore your cities, spread awareness about T1D and also understand the importance exercise in diabetes management.
  8. Language Matters: A guide to sensitize HCPs and other caregivers with regards to communication in T1D – in collaboration with NHS UK. ( https://www.d1abesties.com/languagematters).

 

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Diabetes Action Canada

Website: https://diabetesaction.ca/

Mission

Co-design, implement and evaluate scalable and equitable models of health and social care services for all persons with type 1 (T1D) and type 2 (T2D) diabetes, considering sex/gender, age, and key identity factors throughout.

Description of work

Diabetes Action Canada is a pan-Canadian research organization that was launched in 2016. Funded jointly by the Canadian Institutes of Health Research’s (CIHR) Strategic Patient-Oriented Research (SPOR) program, non-profit organizations (e.g. Diabetes Canada, JDRF), and private sponsors. Our Network consists of a diverse team of patient partners, researchers,diabetes specialists, primary care practitioners, nurses, pharmacists, data specialists, and health policy experts committed to improving the lives of persons living with diabetes.

We focus on bringing patients, their caregivers and researchers together to identify the health concerns of those living with diabetes and to co-create research projects that address these concerns. We partner and collaborate with university research teams across Canada, non-profit organizations, and provincial governments to plan, execute and evaluate these research projects so we can improve patient outcomes and experiences.

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Diabetes & Limb Salvage Foundation, Nigeria

Website: N/A

Mission

To create awareness about communicable and noncommunicable diseases, especially diabetes and hypertension, while advocating prevention and management of diabetes, diabetic foot complications and ulcers; educate and train health care professionals and carers on diabetic foot syndrome and management; to minimize limb amputation; to be the ardent advocate of diabetes prevention through healthy diet and exercise in our communities across Nigeria and beyond.

Description of work

  • We create awareness about diabetes prevention through healthy diet and exercise in communities across Nigeria.
  • We conduct monthly community outreaches directly or in partnership with other sister NGOs like ILSF, DAN, Lion's Club International MD404 Nigeria, to give free glucose screening, BP check, free peripheral neuropathy check, free podiatrist foot examination, free HbA1c check, free body composition check and free lipid profile check.
  • We help set up and coordinate diabetes support groups in communities for a continuous support system.
  • We educate and train health care professionals and carers on diabetic foot syndrome and management of diabetic foot complications/wound care in both government/ private hospitals to increase limb salvaging and reduce limb amputations.
  • We partnered with IDF through Blue Circle Voices network initiative to launched in 2019 a project ("Touch 1000 Hands in Love") which is giving out glucometers and strips to 1000 patients in the next 6 years (individuals diagnosed but unable to afford glucometers).
  • We partnered with government/private hospitals to educate and train their health care providers on holistic diabetes care, while salvaging limbs.
  • We support stakeholders to promote new innovations for diabetes.
  • We raised money to empower those affected by complications of diabetes like amputation and blindness.
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Diabetes Association of Baroda, India

Website: N/A

Mission

Prevent diabetes and create awareness using continuum of care approach (T1DM and T2DM).

Description of work

N/A.

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Diabetes Association of Nigeria, Darazo L.G.A Local Chapter

Website: N/A

Mission

To help manage diabetes and reduce the risk of getting the disease.

Description of work

Awareness, such as health talks to those living with diabetes and the community in general.

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Diabetic Association of Pakistan (DAP)

Visit the website

Mission

The mission of Diabetic Association of Pakistan is to provide specialized medical care and education to the people with diabetes.

Provide total health care including rehabilitation for all people living with diabetes irrespective of gender, economic and social status through different institutions of Diabetic Associations of Pakistan.

Develop leadership in health care through dedicated and transparent management system.

The DAP strives to help the people with diabetes and those who are at risk of developing it by providing innovative patient care, diabetes education and related services with the hope of improving the overall quality of life for those who are affected.

Description of work

Diabetes Association of Pakistan aims to establish and promote awareness of diabetes and its prevention throughout the population. The DAP mission is to encourage healthy lifestyle adaptations which will help reduce the risk of its diagnosis in the future.

The Diabetes Association of Pakistan (DAP) provides education, training and support for the patient with diabetes or at risk of getting it. Some of the services we offer at DAP:

  • diabetes and dietetic education and support
  • foot clinic
  • retinal camera
  • healthy kitchen
  • insulin pump support and education.

DAP works with the patients, their families and their schools or workplace in order to make their surroundings diabetes safe, healthy and supportive.

DAP also works with their health care professional to improve and update their knowledge which will in turn help improve the patients’ care management plan.

We have many community outreach programmes, such as:

  • diabetes awareness programmes at schools and workplace
  • family activities, walkathons and community assessment of diabetes or its risk
  • programmes to support the newly diagnosed patients
  • diabetes prevention camps
  • regional children with diabetes camps – Al Bawasil Camp
  • adolescents with diabetes camp – Al Tahadi Camp.
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Diabetes Australia

Website: https://www.diabetesaustralia.com.au/

Mission

Diabetes Australia was established in 1984 and is the national body for people affected by all types of diabetes and those at risk. Through leadership, prevention, management and research, Diabetes Australia is committed to reducing the impact of diabetes. We work in partnership with diabetes health professionals and educators, researchers and health care providers to minimise the impact of diabetes on the Australian community.

Description of work

Diabetes Australia is a respected and valued source of information, advice and views utilized by government and the community. Our credibility and independence as a national voice allows us to translate knowledge and evidence into advocacy and programmes for diabetes. Through leadership, prevention, management and research, Diabetes Australia is committed to reducing the impact of diabetes. We work in the spirit of collaboration and cooperation. We offer strong leadership, governance and finances for our programmes and our member organizations. As leaders, we assist with administering the NDSS and advocate on issues impacting diabetes in Australia. As a trusted source of information, we offer advice on prevention and management. As a strong supporter of research, we work to develop the field of diabetes research through providing funding towards the prevention, management, and cure for diabetes. Diabetes Australia works to raise the awareness about the seriousness of diabetes, promoting prevention and early detection strategies and advocating for better standards of care. Diabetes Australia is also a significant financial contributor to research into better treatments for diabetes and the search for a cure.

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Diabetes Awareness Foundation, Malawi

Website: N/A

Mission

Our mission is to make every citizen of Malawi aware of the dangers diabetes poses to them.

Description of work

Diabetes is claiming a lot of lives in Malawi because of lack of awareness. Diabetes Awareness Association (DAA) was therefore created with the intention of helping in sensitization about diabetes across the country by carrying out awareness campaigns across the country and in addition to this creating an NCD prevention and health promotion programmes or NCD surveillance, monitoring and evaluation on diabetes.

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Diabetes Canada

Website: https://www.diabetes.ca/

Mission

To lead the fight against diabetes by 1) helping those affected by diabetes to live healthy lives; 2) working to find a cure; 3) preventing the onset and consequences of diabetes.

Description of work

Diabetes Canada is the registered national charitable organization that is making the invisible epidemic of diabetes visible and urgent. Diabetes Canada partners with Canadians to End Diabetes through:

  • resources for health care professionals on best practices to care for people with diabetes;
  • education for patients and their caregivers;
  • advocacy to governments, schools and workplaces; and
  • funding world-leading Canadian research to improve treatments and find a cure.
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Diabetes Center Berne Foundation, Switzerland

Website: https://www.dcberne.com/en/

Mission

Making life better for people with diabetes.

Description of work

DCB supports ideas and projects in the field of diabetes technology worldwide by providing expertise, access to clinical research facilities and its own laboratories, as well as financial resources. The goal is to bring them a big step closer to market entry in a collaborative partnership. The work of the DCB is non-profit – the goals are new insights and innovations around diabetes management as well as a vibrant community.

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Diabetes Centre Suva, Fiji

Website: N/A

Mission

Empowering Fijians to achieve optimal health and well-being through the delivery of cost effective, quality and inclusive health services.

Description of work

N/A

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Diabetes Control and Care Center, Afghanistan

Websites: http://www.diabetescenter.tact.org.af/ and https://www.facebook.com/Diabetes.Care.af/

Mission

TACT exists to serve and facilitate the humanitarian and development work in the country.

Description of work

Diabetes Control and Care Center was established in November 2019 in Kabul, Afghanistan as a non-profit centre. The goal of establishing the Diabetes Control and Care Center is for diabetes education, treatment, and information with sole objectives to improve awareness and access, raise knowledge and skills, and to initiate strong advocacy for national diabetes programmes in the country.

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Diabetes Education & Camping Association, USA

Website: https://www.diabetescamps.org/

Mission

The Diabetes Education & Camping Association (DECA) unites and advances the diabetes camp community with networking, education and innovation.

Description of work

Dedicated. We are dedicated to persons living with diabetes and to the diabetes camp and retreat community. We provide personal and professional experience and knowledge about diabetes, and support to the diabetes camp and retreat community.

Equity and inclusion. We welcome all who are impacted by diabetes and are committed to listening, learning and ensuring that opportunities at diabetes camps and retreats meet unique individual needs. Our vision is a world where everyone with diabetes has a place to belong.

Collaboration. We are a robust infrastructure of collaboration, training and best in class resources that facilitates cutting edge diabetes camp and retreat communities. We are a network of passionate individuals and organizations that understand the value and importance of camp for all who live with diabetes.

Authentic. We bring and welcome authentic and passionate leadership to the diabetes camping community grounded in honesty, integrity and quality.

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Diabetes Fighters' Trust, India

Website: http://www.dfighterstrust.org/

Mission

Advocate for the rights of people living with type 1 diabetes, and neglected communities. Facilitate affordable access to essential medicines and diagnostics for diabetes. Empower the community to understand and further advocate for their own rights.

Description of work

We strongly believe in community ownership and so, whatever small or big we do, it comes from the community. Some of our very recent projects include: OK TATA HORN PLEASE – screening and diabetes education to the long haul truck drivers (high risk group for type 2 diabetes) through animated videos and camps – winners at the Diabetes Storytelling Lab, hosted by Dalberg Media, USAID and World Diabetes Foundation. SchoolED project – Diabetes Empowerment and Education in Schools CareOll.Life – an advocacy platform that facilitates in adding meaning to every lived experience’s story.

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Diabetes Fiji, Inc, Fiji

Website: www.diabetesfiji.com

Mission

To steer Fiji’s national solidarity in combating Diabetes.

Description of work

  • Encourage policy makers at the highest level to help create conducive environments for controlling diabetes.
  • Empower people with diabetes or at risk of diabetes with knowledge and other resources to manage & control their conditions.
  • Create awareness amongst caregivers, relatives, friends, and the larger community to provide the needed support for people with diabetes.
  • Strengthen health care systems to provide appropriate, affordable and sustainable services to people with diabetes.
  • Educate communities on risk factors.
  • Advocate for healthier lifestyles to reduce the prevalence for diabetes and act as an advocate for the general diabetes community.
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Diabetes India Youth in Action – Diya 

Website: N/A

Mission

We are a purpose driven organization with the aim of educating and empowering people living with type1 diabetes in India.

Description of work

N/A

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Diabetes South Africa

Website: https://www.diabetessa.org.za/

Mission

Empowering all those affected by diabetes through support, education and information. Providing awareness to all and highlighting risk factors associated with diabetes and promoting healthy lifestyles.

Description of work

Diabetes South Africa (SA) has been in operation for 52 years, is a registered non-profit and public benefit organization and is a member of the International Diabetes Federation. Diabetes SA believes in encouraging diabetes self-care, a vitally important and cost-effective investment. Treating diabetes and the devastating complications that can follow is far more expensive than providing preventative tools and information. What does DSA do?

  1. We are founder members of the SA Noncommunicable Disease Alliance and represent the interests of people with diabetes at both the local and national level, and lobby for government and medical intervention.
  2. We develop, motivate, assist, and contribute to over 40 Diabetes Community Wellness Groups throughout SA which form a critical element in good diabetes management.
  3. Organize living with diabetes events for underprivileged children and youth with diabetes. Children from all backgrounds living with diabetes can come together and learn about diabetes.
  4. Coordinate the Denim for Diabetes School Awareness Campaign, encouraging healthy lifestyles among school children.
  5. Diabetes SA has a membership option where people with diabetes receive a range of benefits, including a free blood glucose meter, free mohair socks, a free annual eye screening to prevent blindness and booklets on managing diabetes. All for a small annual fee.
  6. Run Diabetes Focus, a quarterly online magazine, which contains articles on a wide range of topics related to managing diabetes and is a crucial support element in the lives of many patients.
  7. Maintain a website with substantial information available free to anyone interested in more information on diabetes (diabetessa.org.za).
  8. Regularly distribute literature to the media, schools, hospitals, clinics, doctors, retirement villages and patients, etc.
  9. Provide advice and information on all aspects of diabetes, including medication, self-management care, diet, exercise, and foot care.
  10. Host regular patient self-care, educational workshops, and seminars on a variety of topics relating to diabetes.
  11. Organize prevention and early detection “Health and wellness campaigns” (e.g. at companies, shopping centres, and community events).
  12. Agents for Change is a Diabetes SA project which takes diabetes education to rural and outlying areas in SA.
  13. Undertake diabetes training for home-based carers, and nurses, some in partnership with the Universities and non-profits employing carers in underprivileged communities.
  14. Speak as invited guests and coordinate educational/awareness health days, expositions, and functions, offering lectures, talks and symposia to both professionals and lay groups.
  15. Involved in different research studies, including research on the medical, social and psychological aspects of diabetes with the Medical Research Council and local and international universities.
  16. Run community-focused awareness and fundraising events.
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Diabetes Youth Care (DYC), Ghana

Website: https://www.diabetesyouthcare.org/

Mission

DYC is a nongovernment organization based in Ghana with the primary aim of bridging the gap between children and young adults living with diabetes and health care professionals with the aim of providing education and psychosocial support to children living with diabetes and their families.

Description of work

DYC provides psychosocial support and education to children and young adults living with type 1 diabetes.

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Diacare, India

Website: N/A

Mission

To provide structured education to people living with diabetes. To empower them to educate others living with the same condition.

Description of work

Provide support and care for people living with type 1 diabetes.

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Direct Relief, USA

Website: https://www.directrelief.org

Mission

A support organization that provides medical relief in cases of emergencies/disasters or to those with limited access to health care products.

Description of work

Direct Relief is one of the world's largest providers of humanitarian insulin. We have programmes with the largest insulin manufacturers, manage the product related to the Life For A Child programme, and manage Rx product around a programme with the International Diabetes Federation for disasters, emergencies, and countries experiencing crisis of on-going lack of diabetes related products.

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E

Empower India

Website: www.empowerindia.org

Mission

Facilitating the community to gain control over their lives by nurturing their innate capacities to make their own choices.

Description of work

Activities:

  1. Health education on diabetes – prevention, treatment and care using communication aids.
  2. Checking body mass index, blood pressure and random blood sugar.
  3. Identifying persons with diabetes, known diabetes and those in the pre-diabetes stage and systemically follow them for counselling, diet and nutrition guidance, physical exercises, appropriate referrals for further care, relaxation techniques for stress free lifestyle.
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European Diabetes Forum (EUDF), Belgium

Website: https://www.eudf.org/

Mission

The mission of EUDF is to ensure that policy action can be directed towards driving better diabetes care at national and European level.

Description of work

The non-profit purposes of international utility of the Association shall be, within the European Union and worldwide to:

(a) provide an international powerful and cohesive platform in which diverse stakeholders are working together to further the improvement of diabetes prevention and diabetes care;

(b) enable health care systems to cope with the diabetes pandemic while achieving the best possible outcomes for people with diabetes;

(c) ensure the translation of research into policy actions towards better diabetes care at national and international level; and,

(d) defend, represent, and promote in the broadest sense of the word the common interests of its members.

To that effect, the Association may develop, alone or in collaboration with third parties, directly or indirectly, all activities related, directly or indirectly, to its purposes including, but not limited to:

(a) facilitating and supporting the cooperation between members and/or stakeholders to address and work on matters related to diabetes care by: a. exchanging, collecting and distributing information on diabetes, diabetes prevention and diabetes care; b. addressing diabetes issues through the development of policy actions at national and international level; c. developing and coordinating joint projects of members on diabetes care; and d. communicating on the activities and achievements of the Association;

(b) disseminate information and issue publications;

(c) organize and arrange congresses, seminars, workshops, and other programmes and convenings at international and national levels;

(d) collect and analyse statistical data;

(e) participate in European Union or other public authorities’ programmes, calls for proposals of the European Union, national governments, or other public and semi-public authorities, and in general to apply for grants from the European Union, national governments or other public and semi-public authorities; and,

(f) cooperate with and assist other initiatives and/or organizations having a purpose similar to the purposes of the Association, as well as other regional and/or international initiatives and/or organizations.

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F

Fayisa Community Based Organization, Kenya

Website: N/A

Mission

To foster health promotion, community education and disease prevention to maintain healthy community.

Description of work

One area of work includes free diabetes and hypertension screening within the Isiolo county. The organization prioritizes in identification and screening of noncommunicable diseases such as diabetes hypertension, cardiovascular diseases and cancer. They work towards raising awareness about noncommunicable diseases, conducting screenings and ensuring individuals receive proper referrals for further diagnosis and treatment.

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Fédération Française des Diabétiques, France

Website: https://www.federationdesdiabetiques.org/

Mission

The French Federation of People with Diabetes (FFD) is the main organization for and key  representative of people with diabetes in France. Run by and for people with diabetes, the organization was created in 1938 by Maurice Paz, who was a diabetic himself. The FFD has  been an officially-registered charity since 1976 and has been formally recognised by the  Ministry of Health as an advocate for people with diabetes since 2007. 

 

Description of work

The Federation is involved three main areas:

  • Information, support and prevention campaigns: We help people with diabetes as well as their families and friends to better cope with the condition. We also raise awareness among all those at risk of developing diabetes. The Federation publishes all kinds of information material (online and offline), runs a peer-led support programme with fully trained volunteers, and organizes dedicated prevention campaigns.


  • Defending and acting for people living with diabetes: We campaign for the individual and collective rights of diabetic patients to be recognized. Using our Legal and Social Services, the Federation campaigns for people with diabetes to have their rights fully recognized as citizens. We fight against any discrimination they can be subjected to, and we advocate for the best possible medical care.

 

  • Research and innovation: Funding academic research to help find a cure for diabetes, and directly contributing to innovation by running sociological studies on the needs and expectations of people with diabetes. In 2015, the Federation launched its own “Living Lab” to help innovators design solutions which really focus on the quality of life of people with diabetes.
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Foundation for Innovative New Diagnostics (FIND), Switzerland

Website: https://www.finddx.org

Mission

FIND, the global alliance for diagnostics, seeks to ensure equitable access to reliable diagnosis around the world. We connect countries and communities, funders, decision-makers, health care providers and developers to spur diagnostic innovation and make testing an integral part of sustainable, resilient health systems. We are working to save 1 million lives through accessible, quality diagnosis, and save US$ 1 billion in health care costs to patients and health systems. We are co-convener of the Access to COVID-19 Tools (ACT) Accelerator diagnostics pillar, and a WHO Collaborating Centre for Laboratory Strengthening and Diagnostic Technology Evaluation.

Description of work

FIND is active in market access, technology development and evidence generation on integrated care delivery in the field of diabetes. Our market access activities include preferential pricing agreements with manufacturers of diabetes diagnostics, as well as trade and supply innovation projects. Technology development focuses on new technologies for self-monitoring of glucose and their suitability for use in LMICs through definition of a target product profile and performance/usability evaluations. Care delivery projects are planned to address evidence gaps in LMICs for implementation of NCD screening and care within infectious diseases programmes.

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Frankel Foundation for Diabetics, USA

Website: https://www.frankeldiabeticfoundation.org

Mission

Our mission is to create awareness about diabetes and to support, represent and serve children, adolescents and adults living with diabetes and their families especially those who don’t have access to clinics, hospitals and health care centres.

Description of work

We organize diabetes education programmes with free health screenings.

We also offer some financial help to those who can't afford their medications. We also make donations of diabetes supplies.

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Fundación Argentina Diabetes

Website: https://www.argentinadiabetes.org/

Mission

We are committed to improving the quality of life of people with diabetes and use new technologies to give them access to reliable information and quality education.

Description of work

Our collaborators exhibit their identities and professional or personal information, accrediting their expertise and knowledge in the subject they are writing about.

The virtual classroom is a platform designed and developed for people who are interested in learning about diabetes. It is a participatory learning space, open to the exchange of ideas and interaction among its members. We offer the following services:

  • EDAM
    Diabetes education for self-management. Intended for people with diabetes or their caregivers. Format: individual. Modality: virtual, participative and interactive and guided by certified medical educators.
  • Virtual education
    Courses for teachers, police officers, pharmacy, nurses, and the community. Personalized advice to health professionals and patients on the use of technology in diabetes. We link up with public, private or individual institutions.
  • Digital consulting
    Analysis of digital projects and campaigns. Online presence. Advice on management in SR management. Adaptation of digital projects to the area of diabetes.
  • Events
    Organization and planning of face-to-face and virtual events related to Diabetes, communication or health.
  • Technology
    Consulting on diabetes technology, to health managers. Evaluation of attitudes and aptitudes for optimal use.
  • Telemedicine
    Virtual consultation for the inhabitants of the province of San Luis.
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Fundación Diabetes Juvenil del Ecuador (FDJE)

Website: https://fdje.org/

Mission

Contribute to improving the quality of life of the community with type 1 diabetes mellitus in Ecuador, promoting education for patients and their environment, making their needs visible and promoting respect for their rights.

Description of work

We start from the people in whom we recognize ourselves, feel empathy and share.

  • The training space is above all the place where you make friends.
  • We promote communication and interaction among all participants.
  • We promote the importance of respect between people.
  • The main method is dialogue, adapted to each context and each individual, in which everyone participates actively.
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G

Gintavenes Health Foundation, Nigeria

Website: N/A

Mission

We are on a mission to drastically reduce the number of lower extremity amputations in Nigeria that result from diabetes complications; we do this through strategic information empowerment for health care professionals, caregivers of people living with diabetes, the people themselves, as well as the general public.

Description of work

Our strategy has been to increase the number of boots on the ground by building capacity through knowledge and skills transfer programmes. We have conducted free trainings and strategically empowered groups with information and other tools to equip them in preventing and dealing with diabetic foot problems. Furthermore, we have conducted free medial outreaches and donated materials and medication alongside free diabetes related testing for people who can’t afford it. We have consistently been in the public health education space, actively conducting online and virtual health webinars and talks educating hundreds of people at a time about vital public health issues and ailments.

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Gold Star Kenya

Website: https://goldstarkenya.org/

Mission

To aid provision of quality, integrated, and sustainable health services, empowering communities for better health and wellness through strategic partnerships, innovation, research, systems strengthening, and environmental conservation via community action.

Description of work

USAID Tujenge Jamii project:

  1. Providing and increasing availability of HIV care and treatment services for priority populations. This includes HIV prevention, diagnosis and treatment of sexually transmitted infections, gender-based violence prevention and response, contraceptives, community mobilization and norms change.
  2. Increasing access to quality health services for mothers, children, adolescents and youth in the select counties. This is achievable through promoting health seeking behaviour and increasing uptake of quality delivery of FP/RMNCAH services.
  3. Advancing high impact evidence based maternal and child nutrition promotion interventions to improve nutrition outcomes.
  4. Promoting water sanitation and hygiene (WASH) and waste management is critical in preventing infectious diseases. In the context of COVID 19, WASH is a mitigation measure for preventing transmission of COVID-19 virus in homes and public spaces.
  5. Strengthening capacity of county health systems, local partners, and communities through training and mentorship to deliver quality health services.

Gold Star Kenya also manages and implements a Gold Star Network of almost 150 facilities and a network of over 200 individual health care workers all over the country. Gold Star Network (GSN) is a social franchise that offers HIV, TB, and reproductive health care services and treatment through private care providers.

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Goodly Heritage Initiative, Nigeria

Website: https://www.facebook.com/theghi.org

Mission

Through successful partnerships, create a functional Nigerian (and African) society that is physically and mentally healthy, free from diabetes, poverty and cares for the girl-child.

Description of work

N/A

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Grand Challenges Canada

Website: https://www.grandchallenges.ca/

Mission

To catalyse innovation that saves and improves the lives of the most vulnerable in Canada and low- and middle-income countries.

Description of work

Grand Challenges Canada supports innovators in low- and middle-income countries that are focused on saving and improving lives. There is no specific programme focused on diabetes, but the organization puts out RFPs for innovators who may have innovative projects that can support the health and improve life quality of those living with diabetes.

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Guinea Association of Education and Assistance for Diabetics

Website: N/A

Mission

Education and assistance to people living with diabetes.

Description of work

Organize awareness campaigns, conduct trainings (such as training peer educators to support other young people with diabetes), and provide educational resources.

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H

Health Compass Initiative, Nigeria

Website: https://www.healthcompassng.com

Mission

To educate our communities, promote health and better lives.

Description of work

“Health Compass Initiative” is a medical student-led organization that tackles the burden of diabetes within Nigeria through community health education and provision of free diabetes screening services. Health Compass Initiative is non-profit, non-partisan and non-political hence, we bring dignified and non-discriminatory NCD related health care services to the doorstep of communities who need them the most. This Initiative is aimed at increasing the awareness of Nigerians to common NCDs, ensure early detection and follow-up while connecting those living with NCDs with expert care. We, through our advocacy, also encourage a proactive attitude among stakeholders within the health sector in Nigeria in regard to NCD-related policies.

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Health Finance Institute (HFI), USA

Website: https://www.healthfinanceinstitute.org/

Mission

The Health Finance Institute (HFI) advocates for and forges data-driven/evidence-based innovative financing partnerships to take on the finance deficit of the deadliest noncommunicable diseases worldwide.

Description of work

HFI advocates for and forges data-driven/evidence-based innovative financing partnerships to take on the finance deficit of the deadliest noncommunicable diseases (NCDs) worldwide. HFI’s health economics and innovative finance programmes work together to articulate the investment case for NCDs and facilitate public–private partnerships to close the financing gap.

Regarding diabetes specifically, HFI has designed a fully implementable type 2 diabetes model, as well as early modelling for type 1 diabetes. HFI’s type 2 diabetes model explores the impacts of increasing access to, and equity of, diabetes screening and treatment in different populations. This model can be used to forecast the health and economic impacts of potential type 2 diabetes interventions or policies and help the public and private sector, including health insurance funds, make the economic and business case for investing in type 2 diabetes.

Equipped with health, economic, and financial expertise, HFI is currently in the process of launching two diabetes programmes: one in Mexico and one in Armenia. HFI will work with local partners in Mexico to increase access to high-quality end-to-end solutions for quality diabetes management, especially to fill gaps such as access to life-saving medical devices for youth living with type 1 diabetes. This pilot will form the foundation of the global Devices for Development Consortium that will initially focus on building real-world data and evidence on continuous glucose monitors for children and youth in under-resourced settings to improve the quality and cost-effectiveness of diabetes care. Additionally, HFI will partner with the Danish Red Cross to create the first social impact bond for type 2 diabetes in Armenia.

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Helebnick Diabetes Foundation, Nigeria

Website: N/A

Mission

To reach out to all people living with diabetes and other noncommunicable diseases, such as hypertension, cancer, sickle cell and kidney disease, with an emphasis on type 1 diabetes to ensure that children living with diabetes live a life where they can achieve dreams like every other child.

Description of work

We provide counselling for people living with diabetes and other neglected diseases. We provide free medical care for people living with diabetes, making sure that they do not run out of medication or care. We organize awareness campaigns to sensitize people about diabetes and other neglected diseases.

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Helmsley Charitable Trust, USA

Website: https://helmsleytrust.org/

Mission

Our vision is a world where everyone has the resources they need to thrive by increasing access to health care, advancing new research and ideas, and improving people’s quality of life, no matter where they call home.

Description of work

Helmsley Charitable Trust is a global philanthropy that has committed more than US$ 1 billion to understanding this disease, developing better treatments, and improving access to care for underserved communities since 2008.

T1D is an autoimmune disease, and the only one requiring day-to-day management that includes regular dosing decisions with a drug (insulin) that can cause death. It’s a lifelong condition that poses significant burdens on individuals, their loved ones, and on health systems in the United States and around the world. Current access to care and existing therapies falls short of easing these burdens, and incrementalism is not an option. Helmsley invests in ideas that have the potential for significant impact. We embrace high-risk efforts, led by dedicated leaders who will be partners and share our vision.

Helmsley’s T1D Program invests in 3 core areas. We invest in modernizing care and unlocking better health outcomes for people living with T1D in the United States. We invest in transforming the trajectory of T1D by finding those at risk, stalling autoimmunity, and revolutionizing therapeutics. We invest in expanding global access to care by improving the affordability of insulin and galvanizing support for strong health systems in low- and middle-income countries.

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Indian Council of Medical Research–National Institute of Epidemiology

Website: https://nie.gov.in/

Mission

To effectively contribute to enhancing the quality of life of Indian citizens and influencing public health practice and policies through research, education and training. We will strive to accomplish our mission by:

  • working with national and international partners in health research with effective use of innovative state-of-art technologies
  • aligning our research with all key stakeholders to generate and implement evidence-based health strategies for an effective and efficient national health system
  • setting standards in public health education that would emphasize professionalism as a core competency
  • strengthening human resources for national public health services through education and training and building bridges between educational and research institutions.

Description of work

N/A

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Indian Society of Lifestyle Medicine

Website: http://www.islm.org.in/

Mission

The mission of the Indian Society of Lifestyle Medicine (ISLM) is to promote the principles and practices of lifestyle medicine in India and to create awareness among the general public, health professionals and policy-makers about the impact of lifestyle factors on health and disease. The goal of the ISLM is to empower individuals to take responsibility for their health and well-being by making lifestyle changes, including healthy eating habits, physical activity, stress management and avoiding harmful habits such as tobacco use and excessive alcohol consumption. The ISLM also aims to provide education and training to health care professionals on the latest advancements and evidence-based practices in lifestyle medicine. The ultimate objective is to reduce the burden of noncommunicable diseases in India and improve the overall health and quality of life for individuals and communities.

Description of work

The Indian Society of Lifestyle Medicine (ISLM) is actively involved in promoting lifestyle changes for the prevention and management of diabetes in India. Some of the key areas of work that the ISLM focuses on in the field of diabetes include: awareness and education: the ISLM works to raise awareness among the general public and health care professionals about the importance of lifestyle changes in preventing and managing diabetes. This includes conducting workshops, seminars and educational programmes to educate people about healthy eating habits, physical activity, stress management and other lifestyle modifications. Evidence-based practices: the ISLM strives to promote evidence-based practices in the field of diabetes management and encourages health care professionals to adopt a holistic, lifestyle-focused approach to diabetes care. Interdisciplinary collaboration: the ISLM works closely with other medical societies, organizations and government bodies to coordinate efforts and maximize the impact of its work in the field of diabetes. Research and evaluation: the ISLM supports research in the field of lifestyle medicine and diabetes to better understand the impact of lifestyle changes on diabetes prevention and management. The ISLM also evaluates and disseminates new findings and best practices to health care professionals and the general public. Policy advocacy: the ISLM works to influence national and local policies related to diabetes prevention and management, with the goal of promoting healthy lifestyle changes and improving access to effective diabetes care. Overall, the ISLM's work in the field of diabetes focuses on empowering individuals to take control of their health and promoting a comprehensive, lifestyle-based approach to diabetes prevention and management.

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Institute Running for Diabetes, Brazil

Website: https://www.correndopelodiabetes.com

Mission

Running for Diabetes fits the gap of loneliness and social exclusion due to low self-esteem that often people living with diabetes face. Through our hybrid programme, we offer a multidisciplinary approach (yoga classes, walking/running training, diabetes education mentoring, roundtables with peers and webinars with experts from different areas) to promote a safe environment of inclusion and empowerment.

Description of work

Often diabetes is misperceived as an incapacitating condition, which leads to stigma and discrimination. Diabetes is a 24/7 job, which demands a lot physically and mentally. The condition can generate the feeling of loneliness, leading to self-isolation and socialization challenges. When we add the social inequalities and discrepancies faced by most of the users of our public health system (SUS) – our target group, these challenges become even bigger. In order to promote the health and well-being of people living with diabetes, we must create a supportive, inclusive and "cosy" environment. With the right support it is possible for any people living with diabetes to reach their fullness. This is exactly what our project intends: to promote social justice and inclusion for those people living with diabetes from marginalized communities.

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Insulin for Life USA

Website: https://www.iflusa.or

Mission

Improving access to diabetes management supplies (domestic, international, disaster relief).

Description of work

We collect in-date, unopened, supplies from individuals or organizations and, following careful inspection, redistribute them through clinics and licensed health care providers. We actively support the diabetes community within the United States and internationally.

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International Agency for the Prevention of Blindness, UK

Website: https://www.iapb.org/

Mission

To achieve universal access to eye health by adding value to and maximizing the impact of the individual and collective work of our members, including those who strive for the inclusion and rehabilitation of those with vision loss, promoting knowledge and awareness of comprehensive eye health system development, particularly at country level.

Description of work

At the International Agency for the Prevention of Blindness, we believe in a world in which no one is needlessly visually impaired; where everyone has access to the best possible standard of eye health; and where those with irreparable vision loss achieve their full potential. Diabetic retinopathy is the most common microvascular complication of diabetes which untreated can lead to vision impairment and blindness. All people with diabetes must have regular eye screening to identify those at risk of blindness and treat them accordingly. Our key priorities are:

  • Global advocacy: Our objective is to raise the profile of eye care with key international institutions, so it receives the attention and resources needed to achieve universal access to eye health.
  • Connecting knowledge: Underpinning our activities is our role in providing authoritative data and information and enabling access to up-to-date knowledge, information and practice.
  • Encourage everyone to Love Your Eyes: Leading global campaigns using existing days like World Sight Day to educate the public, governments, and world leaders to help raise the profile of eye health. Working with our global membership to make sure eye health receives the global political, health and development focus it needs and deserves.
  • Strengthening the network: We will support active partnership building both between members and with other key sectors to tackle the barriers to delivering eye care for all.
  • Providing services: We will aim to provide high-quality, economically viable services which add value to members.
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International Alliance for Diabetes Action (IADA), USA

Website: http://www.iadadiabetes.org/

Mission

IADA exists to ensure vulnerable people in humanitarian crises have access to quality diabetes care; and to stop the unnecessary disability and death of people living with diabetes in these settings.

Description of work

IADA is a partnership of over 40 international organizations with an interest in diabetes from different sectors that is developing concrete collaborative initiatives that will increase access to and quality of care for people with diabetes in humanitarian settings. The partnership leverages the unique skills, expertise, and capacities of both public and private member organizations, to develop and implement bold initiatives with policy-relevant outcomes to make certain that quality diabetes care is globally accessibly to the most vulnerable populations affected by humanitarian crises. IADA’s four key thematic areas are [1] Clinical and Operational Implementation, [2] Access to Essential Medicines and Diagnostics, [3] Policy, Financing and Advocacy, and [4] Data and Research. IADA’s activities include providing expertise around diabetes care in humanitarian settings leveraging the broad knowledge and experience of the consortium members; help build consensus on critical issues; agenda setting by identifying key gaps and brining awareness to critical issues that need to be prioritized and addressed; provide a platform for organizations to connect and collaborate; convene meetings such as symposia, webinars and workshops; facilitate collaboration and synchronization of current and planned activities between organizations; develop open-access training materials and educational resources; participate in advocacy to elevate the voices of people living with diabetes in humanitarian settings, push the international agenda and create accountability; and with the operational depth of consortium members provide technical and implementation support for diabetes care in humanitarian setting.

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International Alliance of Patients' Organizations (IAPO), UK

Website: https://www.iapo.org.uk/

Mission

Our vision is to see patients at the centre of health care throughout the world. Our mission is to help build patient-centred health care worldwide.

Description of work

As an entity in official relationship with WHO, we empower patients, undertake research and advocate the shaping laws and policies to improve global health and the establishment of patent centred quality, safe, accessible, acceptable and affordable health care.

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International Diabetes Federation (IDF), Belgium

Website: https://www.idf.org

Mission

Promoting diabetes care, prevention and a cure worldwide.

Description of work

The International Diabetes Federation (IDF) is an umbrella organization of over 240 national diabetes associations in 168 countries and territories. It represents the interests of the growing number of people with diabetes and those at risk. The Federation has been leading the global diabetes community since 1950. IDF’s mission is to promote diabetes care, prevention and a cure worldwide. IDF is engaged in action to tackle diabetes from the local to the global level ― from programmes at community level to worldwide awareness and advocacy initiatives.

The International Diabetes Federation is divided into seven regions, with the aim of strengthening the work of national diabetes associations and enhancing the collaboration between them.

The Federation’s activities aim to influence policy, increase public awareness and encourage health improvement, promote the exchange of high-quality information about diabetes and provide education for people with diabetes and their health care providers.

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International Diabetes Federation – Europe Region (IDF–Europe), Belgium

Website: https://www.idf-europe.org

Mission

IDF’s mission is to unite the voice of people with diabetes and to engage all stakeholders in creating a person-centred diabetes ecosystem. Its vision is to improve the lives of people with diabetes.

Description of work

IDF Europe is the European chapter of the International Diabetes Federation (IDF). It is a non-profit, nongovernmental organization, established under Belgian law. IDF Europe is an umbrella organization representing 70 national diabetes associations in 44 countries across Europe. We are a diverse and inclusive multicultural network, representing both people living with diabetes and health care professionals.

Our vision is to improve the lives of people with diabetes and our mission, in Europe, is to unite the voice of people with diabetes and to engage all stakeholders in creating a person-centred diabetes ecosystem.

Our priority objectives are:

  • improving access to care and quality of life for people with diabetes
  • increasing the voice of people with diabetes on all levels (#nothingAboutUsWithoutUs)
  • reducing diabetes incidence and preventing complications.

Through our activities, we aim to increase awareness, promote the exchange of best practices and quality information about diabetes, and to influence policy. Of key importance is promoting the understanding that diabetes is a serious condition and that people with diabetes can only live a long and healthy life through their own self-management and adequate support. It is also critical to understand that the diabetes curve can only be flattened by the creation of health-enabling environments addressing the determinants of health, and by the promotion of early action by health care systems including a shift in focus from treatment to prevention.

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International Diabetes Federation (IDF) – South America and Central America Region

Website: https://www.idf.org

Mission

Promoting diabetes care, prevention and a cure worldwide.

Description of work

Our organization promotes the care and prevention of diabetes. We promote education through guidelines, webinars, and an annual congress. Advocacy is one of the main activities of our Associations. We provide health care for people in the entire South America and Central America Region. We are still fighting to get free access to insulin in some of our countries.

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International Rescue Committee, USA

Website: https://www.rescue.org/

Mission

The International Rescue Committee helps people whose lives and livelihoods are shattered by conflict and disaster to survive, recover and regain control of their future.

Description of work

The IRC aims to address NCDs at the onset of a crisis and throughout the recovery period. We work to identify patients who have already been diagnosed with NCDs and ensure they receive uninterrupted treatment and avoid developing complications; help people prevent NCDs; and strengthen health systems to address this growing burden of disease.

The IRC facilitates use of diagnostic and treatment services by setting up laboratories and strengthening staff capacity to manage NCDs at primary health care facilities. We work in diverse settings, from fragile contexts serving internally displaced and conflict-affected communities in Democratic Republic of Congo, South Sudan, Myanmar, Libya, Yemen, Central African Republic, Nigeria, Syria and Somalia, to long-standing Syrian, Burmese, Somali, Sudanese and South Sudanese refugee populations in camps in Chad, Jordan, Thailand, Tanzania and Kenya, to acute onset refugee situations in Colombia, Uganda and Bangladesh.

The IRC works within contexts that experience cyclical shocks and crisis. The path from emergency to recovery is non-linear and often requires development and humanitarian efforts at the same time. The IRC therefore carries out the direct implementation of service while strengthening the capacity of host-country institutions to provide quality services to affected communities.

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International Federation of Pharmaceutical Manufacturers and Associations (IFPMA), Switzerland

Website: https://www.ifpma.org/

Mission

IFPMA represents the research-based pharmaceutical companies and associations across the globe. The research-based pharmaceutical industry’s 2 million employees research, develop and provide medicines and vaccines that improve the life of patients worldwide. Based in Geneva, IFPMA has official relations with the United Nations and contributes industry expertise to help the global health community find solutions that improve global health.

Description of work

IFPMA is working with its member companies, WHO, and other key stakeholders to co-create innovative, multi-stakeholder solutions that will provide integrated diabetes diagnosis, prevention, treatment, and control of diabetes. Our industry is ready to work with national governments and other appropriate local stakeholders in LMICs to collectively work towards practical solutions that would sustainably improve the lives of PLWDs.

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International Limb Salvage Foundation, USA

Website: www.intlimbsf.com

Mission

Promoting awareness about amputation prevention, educating health care givers and diabetes patients on how to prevent and manage diabetic foot complications.

Description of work

Conduct trainings and webinars to educate health care providers on diabetic foot management and amputation prevention techniques.

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International Society for Pediatric, Adolescent and Young Adult Diabetes (ISPAD), Germany

Website: https://www.ispad.org

Mission

Create a better world for children, adolescent and young adults with any form of diabetes.

Description of work

  1. Publish evidence-based clinical practice consensus guidelines (ISPAD CPCG 2018) every 4 years that are accessible for everyone.
  2. Educational materials for health care professionals and persons with diabetes, in close collaboration with other partners.
  3. Professional training for African health care professionals (HCP ADECA).
  4. Hosting of the Annual ISPAD Conference.
  5. Member of European Union Diabetes Forum, IPA Advisory Board of ACCISS III, Permanent Board member of SWEET consortium ( www.sweet-project.eu).
  6. Ongoing global registry: benchmarking outcomes to identify best practice and improve care.
  7. Hosting of interest groups, such as a group of young professionals which is very important for our society (more details at www.ispad.org, under interest groups).
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Jupiter Ayurved Medical College, Nagpur, India

Website: https://www.jupiterayurved.com/

Mission

To provide best facility of health to the community.

Description of work

N/A

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Kabukye Trust, Uganda

Website: https://www.kabukyetrust.org

Mission

Inspiring children and families living in deprived rural communities to achieve extraordinary things.

Description of work

We are a community-based charity based in Kamuli, Uganda inspiring children and young people to achieve extraordinary things. Together, we design products, services, and experiences to improve their lives.

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Kariden Diabetes and Endocrine Centre, Nigeria

Website: https://karidendiabetesendocrinecentre.com/

Mission

  • To successfully manage diabetes and other endocrine diseases using the latest information, treatment and technology.
  • Helping to prevent and manage diabetes and other endocrine diseases through patient education.
  • To organize free outreaches for screening of diabetes and other endocrine diseases.
  • To provide cost-effective treatment for diabetes and other endocrine diseases.
  • To collaborate with other institutions in endocrinology disease care and management.
  • To be a centre of excellence for diabetes and endocrine disease care.

Description of work

  • To develop and utilize state of the art knowledge in improving the care of diabetes.
  • To successfully manage diabetes using the latest information, treatment and technology.
  • To be a centre of excellence for diabetes care.
  • To organize free outreaches for screening of diabetes.
  • To provide information concerning diabetes to the general public to encourage early detection of diabetes, and to foster a greater understanding for those who has diabetes.
  • To assist in the creation of self-management awareness to people with diabetes and their families to achieve and maintain good health and minimize complications.
  • To provide information regarding diabetes to health care professionals to encourage up-to date skills and knowledge.
  • Helping to prevent and manage diabetes through patient awareness programmes, seminars, workshops and symposium, distribution of flyers and magazines on diabetes.
  • To collaborate with other institutions in diabetes management, both locally and internationally.
  • To provide treatment for diabetes to the poor and indigent members of the society.
  • To be a centre of excellence for diabetes care through health care awareness.
  • To liaise with individuals, corporate bodies, parastatals, government and other nongovernmental organizations with similar objectives to assist in realizing its set aims or any of them.
  • To provide free BP checks, blood sugar test and neuropathy screenings.
  • To assist in providing free health enlightenment on diabetes management and prevention to everyone, by creating sensitization through flyers, billboards, seminar, workshops, outreaches and health campaigns.
  • To provide practical dietician presentation on healthy meal preparation for people living with diabetes.
  • To liaise with individuals, corporate bodies, parastatals, government and other nongovernmental organizations with similar aims and objectives to assist it in realizing its set out aims or any of them.
  • To train diabetes health educators for government and private health providers.
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Kidney Health International, Ghana

Website: https://kidneyhealthinternational.org/

Mission

To prevent kidney disease in those without and help prevent progression in those with kidney disease and support those with kidney failure.

Description of work

Public education, free health screening for diabetes, hypertension, body mass index, urine test, and kidney disease. Training of health personnel on the early diagnosis and treatment of kidney disease.

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King Faisal Hospital, Rwanda

Website: https://kfh.rw/

Mission

To provide quality specialized health care, clinical training and research.

Description of work

King Faisal Hospital Rwanda provides comprehensive diabetes care, is involved in advocacy for people living with diabetes and aspires to do meaningful diabetes related research.

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Landmark Group, United Arab Emirates

Website: https://www.landmarkgroup.com/int/en/home/

Mission

Founded in 1973 in Bahrain, the Landmark Group has successfully grown into one of the largest and most successful retail organizations in the Middle East and India. An international, diversified retail and hospitality conglomerate that encourages entrepreneurship to consistently deliver exceptional value, the Group operates over 2100 outlets encompassing over 30 million square feet across the Middle East, North Africa, India and South-East Asia.

Landmark Group has a strong workforce of over 42 000 employees and provides a value-driven product range for the family through its retail concepts: Centrepoint, Babyshop, Splash, SHOEMART, Lifestyle, Max, Shoexpress, Home Centre, Home Box, Emax, UAE’s first food discounter, VIVA and Styli, the Group’s first online-only fashion offering.

The Group is committed to being an employer of choice and has been recognized over the years, recently being named among the top five of Asia’s and the Middle East’s Best Workplaces in 2021 by Great Place to Work®. The Group were also recipients of the prestigious Brandon Hall’s Human Capital Excellence Awards 2021.

Description of work

Landmark Group is committed to raising awareness on the management and prevention of diabetes in India and the Middle East. In 2009, we launched our flagship Beat Diabetes Walkathon, bringing together civil society actors to highlight the various mechanisms of diabetes management. The Walkathon has and continues to gain support from the Dubai Health Authority, the Emirates Diabetes Society, the Dubai Sports Council and Dubai Municipality.

As part of our campaign, we promote early testing, getting active and eating healthy. The campaign has touched the lives of over 120 000 participants and 30 000 children who were actively engaged in our awareness and fitness sessions. The next phase of our programme will focus on scaling the impact and reach of our initiatives through meaningful partnerships.

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Legs4Africa, United Kingdom

Website: https://www.legs4africa.org/

Mission

To help amputees live independently, through the provision of prosthetic legs along with physical and emotional rehabilitation.

Description of work

We improve access to recycled prosthetic legs because everyone should have the opportunity to walk, work and dance again, at an affordable price.

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Life for a Child (LFAC), Australia

Website: https://www.lifeforachild.org

Mission

Support the provision of the best possible health care, given local circumstances, to all children and youth (under 26 years of age) with diabetes in less-resourced countries, through the strengthening of existing diabetes services.

Conduct international advocacy and clinical research, and, where possible, help both young adults and also recipient countries with achieving sustainability.

Description of work

There is a high morbidity and mortality of children and youth with diabetes in under-developed countries. Many young people die undiagnosed or soon after diagnosis. Many others remain chronically unwell with poor metabolic control and develop early and devastating complications and die young. They struggle to complete their education and find employment and marriage partners.

Without support, many young people die soon after being diagnosed. Those who survive may develop complications, such as eye damage and kidney failure. This is where Life for a Child steps in.

We partner with diabetes centres in under-resourced countries to provide young people with:

  • insulin and syringes
  • blood glucose monitoring equipment and test strips
  • HbA1c testing
  • diabetes education, workshops, camps, resources
  • support for health professionals.

Through these partnerships, we are supporting over 34 000 young people living with type 1 diabetes in 45 countries.

From a health systems perspective, there is a need to identify numbers in need, research barriers to care, and foster cost-effective approaches that can be taken by individual government health systems so that these young people can be appropriately cared for. We undertake research and advocacy to support the sustainable provision of diabetes care.

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London School of Hygiene and Tropical Medicine (LSHTM) – The Centre for Global Chronic Conditions, United Kingdom

Website: https://www.lshtm.ac.uk/research/centres/centre-global-chronic-conditions

Mission

To improve understanding of and responses to chronic conditions in low-, middle- and high-income country settings through research, policy and public engagement and teaching.

Description of work

We are a group of researchers from multiple disciplines with skills in epidemiology, economics, social and political sciences, and with a strong focus on health systems. We promote addressing chronic NCDs such as diabetes and considering their interaction with other chronic conditions, in particular mental health, and chronic communicable diseases such as TB and HIV/AIDS. We seek to address diabetes and other chronic conditions in an integrated fashion in response to common determinants and responses between them. We work in low-, middle- and high-income country settings, including transitional settings and vulnerable populations such as humanitarian crises and migrant populations.

Our researchers conduct observational epidemiological studies using large-scale real-world data from across Europe, the Americas, Asia, and Africa to characterize trajectories of diabetes progression, risk factors for onset and major outcomes, risks and benefits of antidiabetic medications, and inequalities by ethnicity and socioeconomic status. Our researchers also draw upon linked electronic health record, genetic and cohort data in the UK Biobank to examine risks of vascular disease, cancer, and dementia across the glycaemic spectrum.

Our researchers lead The Andhra Pradesh Children and Parent Study (APCAPS), a large prospective, intergenerational cohort study in Southern India. One of the key objectives of the APCAPS study is to examine societal and environmental characteristics, linked to urbanization, to predict levels of risk factors for chronic diseases, particularly diabetes.

Our researchers based at the LSHTM/MRC Unit in Uganda work on the following questions: What is the scale of, and forecast for, diabetes in Africa, and who will be most affected? Are the physiology of, and risk factors for, African diabetes similar to those in high income countries? How can we intervene to stem the African diabetes epidemic? The team currently lead the Uganda Diabetic Phenotype (UDIP) study. The primary objective of the UDIP study is to describe the metabolic and immunologic profile of newly diagnosed adult patients with diabetes in Uganda in order to fully understand the unique diabetic phenotype of black African patients.

This is a multicentre cross-sectional study. The data derived from this study will be invaluable in guiding the formulation of optimal diabetes treatment guidelines and targeted preventive strategies for Black/African American populations.

The UDIP study is contributing to a large-scale research bid to generate an evidence base to inform the development of ethnic-specific guidelines for the management of type 2 diabetes by triangulating global data on ethnic differences in diabetes phenotypes and response to antidiabetic treatment. this project will draw on data from electronic health records and cohort studies from eight countries across Europe, Asia, and Africa to determine whether diabetes phenotypes and treatment response differ between people from different ethnic groups residing in the same country, or between people of the same ethnicity residing in different countries. This program of research aims to generate the first-ever like-for-like comparisons between European, South Asian, and African populations across Europe, Asia and Africa to determine whether guidelines for the clinical management of type 2 diabetes need to consider ethnic differences in diabetes phenotypes and treatment response.

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Médecins Sans Frontières (MSF), Switzerland

Websites: https://www.msf.org/ and https://msfaccess.org/

Mission

Médecins Sans Frontières (MSF) is a private international association. The association is made up of doctors, other health care professionals, and a number of professions which help in achieving MSF’s aims. All of its members agree to honour the following principles: Médecins Sans Frontières provides assistance to populations in distress, to victims of natural or manmade disasters and to victims of armed conflict. They do so irrespective of race, religion, creed or political convictions.

Médecins Sans Frontières observes neutrality and impartiality in the name of universal medical ethics and the right to humanitarian assistance and claims full and unhindered freedom in the exercise of its functions. Members undertake to respect their professional code of ethics and to maintain complete independence from all political, economic, or religious powers. As volunteers, members understand the risks and dangers of the missions they carry out and make no claim for themselves or their assigns for any form of compensation other than that which the association might be able to afford them.

Who we are

Description of work

MSF works in over 70 countries worldwide and has been engaged in providing treatment for diabetes care in multiple projects across a number of countries (including Jordan, Lebanon, Iraq, Syria, South Sudan, Democratic Republic of Congo, Tanzania, Kenya, Zimbabwe, and Bangladesh). MSF programmes focus on people living in resource-limited, emergency and humanitarian settings.

MSF has worked to try and advance access to diabetes care for people living with diabetes by demonstrating simplified models of care and ensuring access to uninterrupted treatment. In selected projects, MSF has started to introduce new medicines and technologies such as continuous glucose monitoring with the goal of exploring the impact on quality of care. MSF has developed an advocacy agenda linked to its operations to highlight specific needs for people with diabetes and hypertension and, where relevant, is starting assessments for potential interventions to reduce risk factors and to increase physical activity in the communities where we work. For further information on where MSF is providing diabetes care across the movement please see the international activity report and the following links.

https://www.msf.org/international-activity-report-2020

https://www.msf.org/empowering-children-type-1-diabetes-lebanon

https://www.msf.org/south-sudan-bringing-diabetes-treatment-home

https://msf.org.uk/podcast/diabetes-unseen-humanitarian-emergency

MSF has recently published a study to demonstrate the thermostability of insulin in temperatures experienced in LICs with the aim of helping to address the challenging storage requirements needed for insulin use.

https://journals.plos.https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0245372?id=10.1371/journal.pone.0245372

https://msf.org.https://msf.org.uk/article/diabetes-game-changing-research-will-save-refugee-lives

Alongside MSF's operational commitment to diabetes the MSF Access Campaign works to overcome access barriers to diabetes care, focusing on expanding access to insulin and simplified treatment approaches for hypertension. For further information on the MSF Access Campaign's diabetes work please see https:https://msfaccess.org/diabetes.org/diabetes.

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Medicines Patent Pool (MPP), Switzerland

Website: https://medicinespatentpool.org/

Mission

Our mission is to increase access to, and facilitate the development of, life-saving medicines for LMICs. We do this through an innovative approach to voluntary licensing and patent pooling. We work with a range of partners – civil society, international organizations, industry, patient groups and governments – to prioritize and license novel and existing medicines and health technologies for people in these countries.

Description of work

MPP’s mandate is to accelerate access to affordable quality treatments for people living with HIV, hepatitis C and tuberculosis, as well as HIV-associated co-morbidities. Since 2018, MPP has expanded its mandate to other patented essential medicines on the World Health Organization’s Model List of Essential Medicines (EML) as well as medicines with strong potential for future inclusion on the EML. This includes essential medicines for diabetes such as SGLT2i. In these last 2 years, MPP engaged with several organizations working in diabetes, such as the International Diabetes Federation, and drugs originators, to build the case for voluntary licensing.

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Medtronic LABS, USA

Website: https://www.medtroniclabs.org

Mission

Medtronic LABS designs and implements tech-powered health care delivery models that strengthen and extend health systems into local communities, delivering sustainable outcomes for underserved patients worldwide. Our mission is to expand access to health care for underserved patients, families, and communities across the world. Our current focus is transforming care for chronic diseases including diabetes, hypertension, mental health, and disabilities. We are determined to bridge the gap for the 5 billion+ low- and middle-income people who lack access to health care globally. Our focus on chronic disease is motivated by the urbanization and standard-of-living improvements that are driving an epidemiological shift towards noncommunicable diseases (NCDs), which now account for >70% of mortality in this population. By bridging hyper-local services with cutting-edge technology, we provide sustainable and localized health care solutions that produce measurable patient outcomes for all.

Description of work

We take a population health approach to chronic diseases with a focus on type 2 diabetes and hypertension: we screen, diagnose, risk- stratify, manage, and improve clinical outcomes for patients as early as possible and as efficiently as possible. Our team of 130+ field operations experts, health coaches, clinicians, technologists, and designers support 200+ sites across 5 countries. Our programmes start by expanding access to care through community screenings that leverage point of care diagnostics. We then refer eligible patients to the nearest health facility. Eligible patients either have elevated blood pressure, blood glucose, or have existing diagnoses. Medical staff confirms the diagnoses and patients enrol in our programmes. Upon enrolment, each patient receives a risk score, based on our WHO-approved clinical algorithms. This risk score supports a personalized care plan for each patient. We then leverage community-based management, customized patient engagement strategies, and clinical decision support tools to improve and sustain patient outcomes.

We provide effective and efficient diabetes and hypertension management to patients in Kenya, Ghana, India, and the Philippines. To date, we have measurably improved the lives of more than 40 000 patients, screened over 1 million people for chronic diseases, and trained 2400 community health workers. In addition, we are laying the foundation to scale our impact into Tanzania, Sierra Leone, Rwanda, Bhutan, Cambodia and the USA.

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Meethi Zindagi, Pakistan

Website: https://meethizindagi.org/

Mission

Meethi Zindagi is a duly registered non-profit organization representing the diabetes community of Pakistan. Our vision is to ensure great lives with diabetes, through advocacy, awareness, education, empowerment and support! Our extensive awareness and peer support programmes, along with insulin and test strips and support programmes for the underprivileged, are changing what it means to live with diabetes, for everyone in the diabetes community irrespective of their social and financial status. Our mission statement is: 1. To raise awareness about diabetes, promote its prevention where possible and make quality care accessible to the diabetes community. 2. To be an advocate and platform for person-centred diabetes care. 3. To empower people with diabetes to take up leadership roles in our movement of improving diabetes care. 4. To protect the rights of people living with diabetes and enable them to take the reign of their lives. 5. To conduct thorough research and develop and promote electronic and remote health care services.

Description of work

Community centric (patient) organizations add value by being close to the community they represent. This is exactly what Meethi Zindagi is all about for the diabetes community in Pakistan. Though we started our work as the sole representative of the type 1 diabetes community, our work has spanned into formation of a type 2 community group as well, within the broader scope of the legally formulated organization that works mainly for type 1 diabetes. Meethi Zindagi is a community centric not-for-profit organization aiming to target educational, financial and psychosocial factors affecting the health and lives of the Pakistani diabetes community and improving it by the provision of social, emotional, medicinal (medicines and testing, etc.), educational support and advocacy. We are certified by Pakistan Centre for Philanthropy exhibiting as a seal of transparency and exhibiting excellence in systems and governance. Being fully legally compliant, we hold an approved charity status by the Charity Commission and Federal Board of Revenue. The vision of Meethi Zindagi, as the name suggests (translated as “sweet life”) is to bring the sweetness back to the lives of people with diabetes through innovative and widespread solutions, utilizing a culturally tailored hybrid of technological and conventional methodologies. Each step and project represents value addition to existing conventional models during the transition phase as we inch forward towards reaching every person with diabetes and making care accessible with the use of technology and distributed models. Our following projects revolve around these key areas:

  • Promise of insulin – provision of insulin, blood sugar test strips, and HbA1C tests to underprivileged children with type 1 diabetes, at their doorsteps, utilizing a network of collaborating doctors and health care institutes across Pakistan.
  • Structured diabetes education programmes – for our diabetes community, designed as workshops, pictorial activities and fun filled learning camps, the programmes aim at empowering people with diabetes to live thriving lives!
  • School awareness programme – aimed at creating awareness and understanding of various types of diabetes and healthy lifestyle habits, supporting teachers with structured education courses to learn and educate families, children living with and at risk of developing diabetes.
  • Peer support – emotional well-being and social support, augmented by peer education through lived experiences – virtual and face-to-face.
  • Advocacy – stigma, discrimination, social taboos, health care policy gaps and rights of people with diabetes in collaboration with international advocacy organizations.
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Midlands Diabetes Interest Group, Zimbabwe

Website: N/A

Mission

The Midlands Diabetes Interest Group strives for the recognition, promotion and protection of the health of people living with diabetes, through the provision of support, education and practical advice in both the community in which they live and all accessible gatherings.

Description of work

a) Training programmes: facilitating training in capacity building of health care providers, volunteers and peer educators in all the 8 districts of the Midlands Province in the care and management of diabetes.

b) Education: advancing education to diabetic patients and their primary caregivers in the care and control of diabetes.

c) Awareness: production of posters, flyers and billboards; conducting sporting activities, road shows and workplace educations to raise awareness on the signs and symptoms, control, management and complications of diabetes in communities of the Midlands Province.

d) Raising funds: conducting fund-raising activities for the sustenance of diabetes programmes in the province.

e) Advocacy strategies through which MidDIG addresses cross-cutting issues that arise from the above core programmes. This also involves lobbying for the welfare and provision of proper care and support for diabetic people.

f) Entrepreneurship training: provision of sustainable and profitable means of livelihoods; training of income generating activities and financial management; support to orphans and vulnerable children (OVC) to attain vocational skills and provision of basic start up tool kits to affected children in the communities.

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Mogadishu Somali Turkish Training and Research Hospital, Somalia

Website: https://strh.edu.so

Mission

To offer health services.

Description of work

The hospital is the only one that provides a residency programme to the young doctors graduating from medical schools. With variety of residency programmes from internal medicine to very rare programmes such cardiovascular, and dermatology, etc.

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Moppets Diabetes Foundation, Nigeria

Website: N/A

Mission

  1. To reach out to all the people living with diabetes and other noncommunicable diseases such as hypertension, cancer, sickle cell and kidney disease, but more emphasis on type 1 diabetes because they are the most neglected.
  2. To ensure that children living with diabetes live a life and dreams that they desire like every other child.
  3. To promote education and entrepreneurship among people living with diabetes and other noncommunicable diseases.
  4. To create awareness and sensitize the general public on the issues of diabetes, etc.
  5. To ensure that people living with diabetes have free medical care such as insulin and drugs, etc.
  6. To ensure adequate counseling, monitoring and of people living with diabetes and other noncommunicable diseases.

Description of work

  • We provide counselling of people living with diabetes (PLWD).
  • We provide free medical care for PLWD making sure that these children with type 1 diabetes don’t run out of insulin.
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Moroccan League for the Fight against Diabetes

Website: http://www.lmlcd.com/index.php

Mission

  • To raise awareness and participate in the training of general practitioners, specialists and other health professionals for better care of people with diabetes.
  • To develop the prevention effort in terms of public health.
  • To promote diabetological research.
  • To help diabetics to improve the conditions for managing their disease.
  • To promote the education of diabetics.
  • To defend the rights of diabetics, on the basis of the international charter of the IDF.
  • To contribute to the effort to inform the general public about diabetic disease.

Description of work

  • Organization of scientific meetings and congresses about diabetes and nutrition for physicians and nurses.
  • Educations campaigns for patients and the general population about diabetes and healthy lifestyle.
  • Screening for diabetes in remotes areas in Morocco.
  • Celebration annually of the World Diabetes Day.
  • Advocacy to improve diabetes prevention, diagnosis and treatment in Morocco (with parliament and government).
  • Partnership with national and international institutions sharing the same objectives.

 

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National Hospital Organization, Kyoto Medical Center, Japan

Visit the website

Mission

To collaborate with WHO in the development of “diabetes prevention and control program” and its implementation in Asia–Pacific countries. To assist WHO in training doctors and nurses in the Western Pacific Region for improving the skills of management of diabetes.

Description of work

At the request of WHO adapt the general WHO and International Working Group on Diabetic Foot guidelines on prevention of amputations for use in the South-East Asia and Western Pacific regions.

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NCD Child, Canada

Website: https://www.ncdchild.org

Mission

NCD Child is a global multi-stakeholder coalition championing the rights and needs of children, adolescents, and young people who are living with or at risk of developing noncommunicable diseases (NCDs). The mission for NCD Child is to ensure that issues related to NCDs are addressed and prioritized in national, regional and global policies. Above all, these policies should centre around children, adolescents, and young people. Furthermore, we work to ensure the voices of young people and families are heard in all settings where policies, systems or programmes are developed and implemented.

Description of work

  • Advocate for the inclusion of children, adolescents, and young people in the global noncommunicable diseases (NCDs) agenda, including participation in the diabetes movement.
  • Contribute to, and develop evidence-based resources related to NCD prevention and control including diabetes.
  • Develop learning materials on how to effectively advocate for improved prevention and management of NCDs among young people, including diabetes.
  • Support youth advocates to ensure their meaningful and sustained engagement in global, regional, and national NCD spheres, including representation of young people living with diabetes in the Young Leaders Program.
  • Advocate for improved access to essential medicines and equipment, including insulin and diabetes supplies, through the Taskforce on Essential Medicines and Equipment.
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NGO Santé Diabète (Association Santé Diabète), France

Website: https://www.santediabete.org

Mission

Santé Diabète is a nongovernmental organization founded in 2001 to respond to the lack of access to health care for people with diabetes in Africa and to the failure to take this health emergency into account by development actors at the global level. First present in Mali, Santé Diabète then expanded its programmes to Burkina Faso, the Comoros as well as in France (headquarters of the association) with permanent teams in each country and a network of more than 200 local and international partners. With a team of 40 people and more than 200 local and international partners, Santé Diabète acts every day in countries to save lives through prevention and diabetes management programmes that aim to improve the quality of life of people affected by this chronic disease.

Description of work

The intervention of our NGO focuses on a comprehensive approach including on all the aspects to implement quality prevention and management of diabetes.

This innovative approach translates into practice by the establishment of 6 components:

1. Primary prevention

  • to reduce the human and economic burden of the progression of the disease.

2. Decentralization of care

  • to guarantee the geographical accessibility of the populations to quality care.

3. Secondary and tertiary prevention/therapeutic literacy/education

  • to reduce the burden of complications from diabetes.

4. Reduction of care costs

  • to make it possible for populations to access diabetes care.

5. Integrated approach

  • to include active participation of patients and their families by supporting patient associations, self-management and advocacy mechanisms.

6. Research

  • to develop innovative approaches in the research/diabetes sector.
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Northern Light Sebasticook Valley Health Podiatric Medicine and Surgery

Website: https://northernlighthealth.org/

Mission

Our goal is to reduce amputations associated with diabetes in rural and underserved populations

Description of work

N/A

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    Parliamentarians for Diabetes Global Network, United Kingdom

    Website: https://www.pdgn.co.uk/

    Mission

    Our primary objective is to enable law-makers to help prevent diabetes, encourage early diagnosis of diabetes and improve the treatment of diabetes in every part of the world.

    Description of work

    PDGN produces newsletters informing members of initiatives and best practice, and holds a biennial forum for members to come together and discuss the challenges and solutions to successful advocacy and championing diabetes within their countries. Together we need to grow into a force that reaches a tipping point where resources devoted to the prevention, diagnosis and treatment of diabetes and its comorbidities are not questioned. Where people with the condition can access the treatment, they need. Where people are not-discriminated against in work or their community because of ignorance or misunderstanding.

    Following our first forum and the signing of the Melbourne Declaration in 2013 cross-party groups of parliamentarians advocating for diabetes were established across the globe while motions and debates were instigated in parliaments as far apart and diverse as Bolivia and Malta, Australia and Russia, Scotland and Kenya.

    PDGN exists to encourage and support advocacy, to inform and educate decision-makers, to provide resources and assistance to people who can put issues on the agenda, to gain publicity for causes and change budget-lines and legislation.

    Two years after our inaugural forum and the establishment of our network, the UN General Assembly approved the Sustainable Development Goals, with universal access to health care and to essential medicines being key goals within a specific health goal. Both the Global Health Targets and the Sustainable Development Goals have the potential to make a radical improvement to diabetes care and to prevention.

    After our second forum in Vancouver in 2015 members committed themselves to support the UN targets and work to prevent any government reneging on its commitment to achieve these goals. PDGN’s job is to support its members become champions for diabetes and its comorbidities within their legislatures.

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    Partners In Health, USA

    Website: https://www.pih.org

    Mission

    Our mission is to provide a preferential option for the poor in health care. By establishing long-term relationships with sister organizations based in settings of poverty, Partners In Health strives to achieve two overarching goals: to bring the benefits of modern medical science to those most in need of them and to serve as an antidote to despair. Partners In Health, through the NCD Synergies program, works to ensure that everyone living with NCDs receives health care by helping governments incorporate NCD programmes into their public health systems and supports the NCDI Poverty Network in advocating for, and implementing integrated strategies that involve partners across National NCDI Poverty Commissions.

    Description of work

    • Direct care provision to patients with diabetes across care delivery programmes in countries where PIH works, in close coordination with ministries of health.
    • Implementation of the PEN-Plus model of integrated outpatient care for severe NCDs (including type 1 diabetes) in five countries (Rwanda, Malawi, Liberia, Sierra Leone, Haiti), as well as training leadership and development for nurses and mid-level providers, work with ministries of health on national operational planning, and advocacy and policy efforts to promote and support the implementation of the WHO/AFRO regional strategy on PEN-Plus.
    • Integrated community screening efforts as well as patient education and self-management efforts in countries including Malawi, Liberia and Rwanda, including shared medical appointments where people living with the same condition all come on the same day and do patient education and peer support programming as a group.
    • Partnerships in Haiti with Kay Mackenson Center to provide diabetes camp programming and options for families around diabetes homes closer to care.
    • Research and implementation efforts around diabetes self-management education in rural Liberia and a research study to explore the feasibility of continuous glucose monitoring in rural Malawi.
    • Advocacy around the expansion of equitable diabetes services and treatment particularly for the most vulnerable, through consultations, events, and initiatives and programmes like the NCDI Poverty Network, the PEN-Plus Partnership and the Voices of NCDI Poverty advocacy fellowship to support and amplify the leadership of young people living with severe NCDs like T1D.
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    PATH, USA

    Website: https://path.org/

    Mission

    Our mission is to advance health equity through innovation and partnerships.

    Description of work

    Through partnerships and collaborations with ministries of health (MOHs), PATH has been working in NCDs for more than 20 years, starting with work in breast and cervical cancer and expanding to diabetes and cardiovascular risk in 2012. PATH’s NCD Program’s focus areas include:

    1. Strengthening primary health care to reach people where they live with awareness, screening, early diagnosis, and treatment.
    2. NCD prevention through school health and workplace wellness.
    3. Implementation of digital solutions and innovative models of service delivery including engagement of community health workers, social enterprises, and private-sector partnerships.
    4. Awareness raising and interventions at the national, regional, and global levels toward ensuring continuous access to high-quality medicines and health.
    5. Products for NCD care.
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    Persatuan Diabetes (PERSADIA), Indonesia

    Website: N/A

    Mission

    Raising diabetes awareness and advocating for diabetes health care access across the country.

    Description of work

    Diabetes workshops on raising diabetes awareness and advocacy ensuring healthcare access for people with diabetes.

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    Plavi Krug – Citizen Association for the Battle Against Diabetes in Belgrade, Serbia

    Website: http://plavikrug.org/

    Mission

    To make Belgrade a healthier place to live. For people with diabetes to take care of themselves and their health, because only adequate self-control provides a better quality of life. The main goal of the association is to improve the position and quality of life of people with diabetes, their families, friends. and all those affected by this disease.

    Description of work

    Through a series of actions and education, we try to raise the level of health culture, share various experiences regarding the proper treatment of this disease and help people understand what diabetes really is and how to live with it.

    Informing the public about the importance of preventing the occurrence of diabetes, organizing workshops, forums, and seminars for people with diabetes and those interested in this condition, helping patients to exercise their rights in health, etc.

    Organizing Plavi Krug marathon (second biggest in Serbia) and humanitarian sport tournaments in football, basketball, tennis, etc.

    Our goal is to encourage the food industry to produce food suitable for people with diabetes, as well as to launch an initiative to open appropriate stores and restaurants for diabetics and all those who care about their diet and health.

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    Podiatry Foundation of Nigeria

    Website: N/A

    Mission

    Podiatry Foundation of Nigeria will increase access to podiatry services to people under served in all communities especially sufferers of noncommunicable disease by advocacy, outreach and patient education.

    Description of work

    • Free diabetes foot screening
    • Media advocacy for podiatry recognition in Nigeria
    • Blood sugar screening
    • Patient education
    • Community outreach.
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    Positive on Glucose, Lebanon

    Website: N/A

    Mission

    To share knowledge and connect people, and to improve the quality of life of the people living with diabetes through education, coaching, a support network, and advocacy to support people living with this condition.

    Description of work

    The organization orchestrates weekly diabetes support group sessions, advocacy training, diabetes education from a holistic approach, support sessions for caretakers of people living with diabetes, collaboration with local actors to educate and support elderly community members and educate them about their conditions, collaboration with hospitals to provide donated diabetes medication and supplies.

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    Primary Care International (PCI), UK

    Website: https://pci-360.com/

    Mission

    We build capacity in people and primary health care systems by:

    • training health care workers to deliver evidence-based care adapted to local contexts
    • working with people to develop their strategic and organizational approach to care, and to train others
    • using a family medicine approach with a focus on noncommunicable diseases.

    Description of work

    PCI supports quality of care for managing chronic diseases at primary care level in low- and middle-income countries.

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    Professor M Viswanathan Diabetes Research Centre and M V Hospital for Diabetes Pvt Ltd, India

    Visit the following websites:

    Professor M Viswanathan Diabetes Research Centre

    M V Hospital for Diabetes Pvt Ltd, India

    Mission

    To achieve proper prevention and management of diabetes in the region.

    Description of work

    M V Hospital for Diabetes situated at Royapuram, Chennai was established by late Professor M Viswanathan, Doyen of Diabetology in India, in 1954 as a general hospital. In 1971, it became a hospital exclusively for diabetes care. Under Professor Viswanathan's professional and administrative leadership, the hospital has grown to achieve the status of a teaching institution of international excellence. The hospital along with the Diabetes Research Centre undertakes research and imparts post-graduate training in diabetology to doctors. The centre is designated as the World Health Organization's Collaborating Centre for Research, Education and Training in Diabetes. The terms of reference (TOR) of the centre include:

    • TOR1: under WHO leadership conduct epidemiological research on prevention and identification of predictors of diabetes and its complications and its associated co-morbid conditions of public health importance.
    • TOR2: To strengthen education and training in diabetes research, prevention and management.
    • TOR3: To develop methods for reducing diabetes risk factors at the community level.

    The current activities for the terms of references include:

    • TOR1: Trends in rates of lower-limb amputation rates in people with diabetes.
    • TOR2: Training for community health workers on prevention and non-medical management of diabetes in primary care.
    • TOR3: A review of the published interventions to prevent diabetes in low-income settings.
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    Rainbow Specialist Medical Centre, Nigeria

    Website: https://www.rainbowspecialistmed.ng

    Mission

    Excellence in health care delivery, research and training and providing quality and affordable health care.

    Description of work

    Diabetes out-patient services, diabetes education services, diabetes foot capacity building.

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    Raven Indigenous Impact Foundation, Canada

    Website: https://riif.ca

    Mission

    To improve the well-being of Indigenous Peoples. We research and co-create supportive financial solutions in climate and health – centring the needs, traditions, and voices of Indigenous communities.

    Description of work

    Our primary activities include engaging in research and education. Our focus areas currently are the wellness of our people (health), and the wellness of Mother Earth (climate).

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    Rays of Hope Support Initiative, Nigeria

    Website: https://www.rohsi.org

    Mission

    At Rays of Hope Support Initiative, our mission is to provide a platform of wellness and well-being to our community by providing consistent, excellent and accessible health-awareness programmes to all in need of care, regardless of their status.

    Description of work

    As an organization, we raise awareness, provide health education, screening, medical advice, medications, and do follow-up to people of the community we serve on issues related to noncommunicable diseases – with an emphasis on hypertension and diabetes.

    We have reached and impacted the lives of the underserved Nigerians in our targeted community who are not aware of living with the life-threatening effects of hypertension and diabetes and the preventive methods.

    Through our social handles and community health outreaches, we have provided medical screening, health tips and advice, medication, and follow-up to all in need of care with an emphasis on poor and vulnerable ones among them.

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    Resolve to Save Lives, an initiative of Vital Strategies, USA

    Websites: Resolve to Save Lives Initiative: https://resolvetosavelives.org/
    and Vital Strategies: https://www.vitalstrategies.org/

    Mission

    Vital Strategies will sustain partnerships with key international organizations, foundations and governments and implement and manage initiatives that will significantly improve and strengthen national and local health systems and organizations and, by doing so, improve the health conditions of individuals and communities throughout the world.

    Description of work

    Resolve to Save Lives (RTSL), a non-profit, global health organization, supports the implementation and scale-up of national hypertension control programmes in 9 low- or middle-income countries outside of the Western Hemisphere and 12 countries in the Latin America and the Caribbean region (in partnership with the Pan-American Health Organization). While RTSL’s work is primarily focused on hypertension management, diabetes management has been integrated in several country programmes.

    In Karnataka state in India, facilities that are part of the India hypertension programme have integrated a WHO HEARTS-D-based simple diabetes treatment protocol into their procedures and health care workers are providing oral diabetes medication at the primary health care level. Health care workers affiliated with RTSL hypertension programmes in India, Bangladesh and Ethiopia can record blood glucose measurements and diabetes medications electronically at each patient visit through the Simple mobile application, which facilitates monitoring and follow-up of diabetes patients. Similar to Simple’s web-based hypertension dashboard, RTSL plans to develop a diabetes dashboard to enable officials and health system managers to monitor trends and progress across facilities and regions.

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    SA Diabetes Advocacy, South Africa

    Website: https://www.diabetesadvocacy.org.za/

    Mission

    • To unite all the various organizations of people with diabetes in South Africa.
    • To improve access to care based on lived experience with diabetes.
    • To enable and guide people with diabetes and those aligned with diabetes in diabetes advocacy strategy.
    • To empower all people with diabetes of every kind to raise their voices, so that everyone feels included.
    • To recognize those aligned to diabetes to further diabetes advocacy in South Africa.

    Description of work

    Campaigns, advocacy and diabetes conferences.

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    Semmelweis University Diabetes Dental Research Group, Hungary

    Website: www.semmelweis.hu

    Mission

    To support oral health education and prevention for people living with diabetes.

    Description of work

    Organizing free oral screening for patients with diabetes in Hungary.

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    Sinocare Diabetes Foundation, China

    Website: https://www.sdf.org.cn/

    Mission

    To help people with diabetes live a healthy and happy life through diabetic education and innovation.

    Description of work

    N/A

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    Sociedad Argentina de Diabetes

    Website: http://diabetes.org.ar/2020/

    Mission

    We are a non-profit scientific organization made up of health professionals dedicated to the generation and exchange of knowledge at a national and international level. We contribute to education and research to promote, prevent, diagnose and treat diabetes and its comorbidities, favouring a better quality of life for people with diabetes mellitus

    Description of work

    Training of human resources of the health team. Preparation of guides and recommendations. Scientific days and scientific congresses for the dissemination of diabetes and cardiovascular risk factors.

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    Solomon Islands National Referral Hospital

    Website: N/A

    Mission

    Treating sick Solomon Islanders.

    Description of work

    N/A

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    Somali Medical Association

    Website: https://sma.org.so/

    Mission

    To build a sustainable professional association of medical doctors that will delivery of qualitative health care services though continuous professional development, advocacy, and research in collaboration with other health sectors.

    Description of work

    Currently, we have over +1000 members, which includes country branches in the south, central, eastern and northern regions.

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    South African Public Health and Preventative Medicine Association

    Website: N/A

    Mission

    The mission of Association is to support and to promote the development, communication, understanding and use of public health medicine and preventive medicine in South Africa, in support of accessible, affordable, safe, effective and efficient health care delivery.

    Description of work

    • To promote the science and practice of public health and preventive medicine in the field of cardio-metabolic renal medicine.
    • To conduct regular meetings to promote continuous professional development in cardio-metabolic renal medicine for all health professionals (conducted virtually on every month).
    • To work with NCD alliance and nongovernmental organizations for promotion and enabling health and wellness across the life course.
    • To work with NCD alliance and nongovernmental organizations to ensure people living with diabetes receive integrated people-centred health services to prevent and control NCDs+.
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    Staffordshire University, UK

    Website: https://www.staffs.ac.uk

    Mission

    We are the Connected University. We’re connected to the needs of our students, to business and to society. Our industry connections and emphasis on experience make our graduates among the most employable in the UK. Our gold award in the 2019 Teaching Excellence Framework recognizes excellent standards of learning and teaching, while 78% of our research is world-leading or of international importance (Research Excellence Framework 2014). Our interdisciplinary network of research centres drives the publication of hundreds of papers each year.

    Description of work

    The Centre for Biomechanics and Rehabilitation Technologies (CBRT) at Staffordshire University is made up of a vibrant group of researchers led by Professor Chockalingam, who is an internationally recognised researcher in the area of foot and footwear biomechanics. Improving health, quality of life and health care provision by solving complex biomechanical issues is the focus of the CBRT’s research. This is delivered through highly innovative and integrated inter, and multidisciplinary approaches in areas related to diagnosis, prognosis, prevention and intervention related to diabetic foot disease. Research themes include medical engineering, computational biomechanics, biomechanical analyses, and tissue mechanics. The team leads systematic reviews and conducts clinical trials for technology assessment around diagnostics and prescription, and has delivered WHO funded work on prosthetics and orthotics. The CBRT has produced over 150 high quality and impactful outputs and published in over 50 different journals reflecting its multidisciplinary interests. As evidenced by a growing number of citations, these outputs and the multidisciplinary research interest is developed organically through international collaborations focused on translational research (over 45% of CBRT’s publications are internationally co-authored).

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    Stitching Health Action International (HAI), Netherlands

    Websites: https://haiweb.org/ and ACCISS Study https://haiweb.org/projects/acciss-study/

    Mission

    HAI’s vision is a world in which everyone, everywhere, has access to safe, effective, affordable and quality-assured medicines. To make our vision a reality, the mission of our staff, members and partners is to create lasting change to government and industry policies and practices through research, evidence-based advocacy, and public awareness initiatives at national, regional and international levels.

    Description of work

    Since its inception in 2015, HAI’s Addressing the Challenge and Constraints of Insulin Sources and Supply (ACCISS) Study has been working to identify and address the inequities and inefficiencies in the global insulin market. We work in partnership at the global and national levels to advocate for improved access to insulin, diagnostics and care.

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    Sweet Life Diabetes Community, South Africa

    Website: N/A

    Mission

    No information provided.

    Description of work

    We are South Africa's largest online diabetes community, and our focus is on diabetes education that truly connects with people living with diabetes in South Africa. We are a registered NPO with a single focus: to improve diabetes in South Africa.

    Sweet Life is a diabetes community that informs, inspires and connects people with diabetes in South Africa. Get expert advice on all you need to know about diabetes and join a community of South Africans living with diabetes. Just because you have diabetes, doesn’t mean you can’t live a happy, healthy life.

    As a registered NPO (220-984), our goals are:

    To improve the diagnosis number in SA (at the moment 1 in 2 people with diabetes are undiagnosed).

    To improve the health of people with diabetes in SA by encouraging TEEL:

    • take your medication
    • eat healthy food
    • exercise, a little every day
    • lose weight, if necessary.

    Our focus is on simple, easy-to-understand information for South Africans living with diabetes. Diabetes isn’t just a medical condition. Our team includes top diabetes experts in South Africa. These diabetes experts help us to provide you with reliable, relevant and medically accurate diabetes information.

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    T1International, United Kingdom

    Website: https://www.t1international.com/

    Mission

    We support local communities by giving them the tools they need to stand up for their rights so that access to insulin and diabetes supplies becomes a reality for all.

    Description of work

    We provide people living with diabetes worldwide the resources and training they need to advocate for access to insulin and diabetes treatment supplies in their own countries and communities. We do this through four foundational pillars: 1) we raise awareness of type 1 diabetes (T1D) issues and share the voices of people living with T1D around the world; 2) we work toward a higher standard of research, data and statistics about the issues faced by those with T1D; 3) we act as a knowledge hub, providing and signposting to key information and resources related to T1D; 4) we campaign for systemic and sustainable change for people with T1D globally.

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    Talabi Diabetes Center, Nigeria

    Website: https://www.talabidiabetescenter.org

    Mission

    Objectives for which the Center is established are:

    • To provide awareness of diabetes mellitus and its debilitating effects through innovative and socioculturally sensitive strategies.
    • To design and provide home grown and appropriate technologically driven intervention and treatment programmes for Nigerians suffering from diabetes.
    • To ensure the acquisition of up-to-date how-to-skills of diabetes prevention and management for persons with diabetes, the health care providers and the community at large.
    • To carry out research and consultancy services for enhancement of general health.
    • To disseminate Talabi Diabetes Center research findings to health care providers and the community and provide a 3-way attack, diagnosis, education and support to various groups and associations with similar objectives.
    • To continually run its clinical complex at Ishara as a primary care centre for diabetes (within the noncommunicable disease scenario) working in collaboration with related secondary and tertiary care level institutions.
    • To give and receive research grants, establish short term fellowships, award prizes and endow professorial chairs in diabetology.
    • Run educational and training programmes, workshops, seminars and symposia as deemed fit, for patients and health care personnel and the general community in diabetes and allied diseases.

    It shall enter into any arrangement with any government or other authority, federal, state, local, municipal, foreign agencies or otherwise with similar or ancillary objectives and be free to obtain from any such government or authority all right, concessions and privileges which may seem conducive to the Center’s objective or any of them.

    Description of work

    Talabi Diabetes Center engages groups and communities and delivers information on diabetes symptoms, risk factors and prevention. The Center also engages and trains primary health care workers to strengthen their capacity to deliver basic diabetes care and equip primary health care centres with glucose monitors and strips. Our Center also screens willing individuals for diabetes and hypertension during our community outreaches.

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    Tehran University of Medical Sciences – Endocrinology and Metabolism Research Institute (EMRI), Iran

    Visit the website

    Mission

    Having role as one of the highest ranking medical research entities in Iran, the Endocrinology and Metabolism Research Institute (EMRI) has remained at the vanguard of building and strengthening research culture and conducting clinical and basic medical sciences research projects. Moreover, it has played a key role in heightening public awareness, professional education, and provision of clinical services in the field of noncommunicable disorders with a focus on diabetes, osteoporosis, and metabolic diseases.

    Description of work

    EMRI is an interdisciplinary research facility in the field of endocrinology and metabolism, including diabetes, and provides a multifaceted approach to restore patients’ health through forging collaboration amongst different basic, clinical, and population-based sciences.

    A.1. Activities on diabetes research:

    • Conducting multicentre studies with cooperation of Iranian medical universities (Shiraz,Mashad, Esfahan…).
    • Organizing Iran Diabetes Leadership Forum.
    • Conducting NCD diseases project in the city of Ghazvin, in cooperation with WHO.
    • Conducting national project on gestational diabetes mellitus.
    • Close cooperation with prestigious world universities and research centres to conduct joint projects. Strong collaborations exist between his department and the department of endocrinology of University of Tennessee, University of Alberta, University of Toronto and Mayo clinic as well as Oxford University and the Harvard University.
    • Collaborating with NGOs to support patients with diabetes.
    • Establishing the National Diabetes Research Network.
    • Conducting research on new therapeutic approaches on diabetes e.g. Islet Transplantation Projects.

    A.2 Activities on diabetes education:

    Public and professional education at EMRI encompasses a wide range of activities including capacity building of health care professional through organizing professional training sessions, fellowship, PhD by research, clinical physician, and sabbatical programmes.

    EMRI has also played a great role in education of medial students at different stages of medical training, from basic sciences to endocrinology fellowship. Besides academic education, the Institute has effectively contributed to ongoing training programmes through design and implementation of various accredited workshops and training courses for medical graduates and nurses who wish to update their knowledge on different endocrinology-related subjects with a special focus on diabetes and diabetic foot. Many of such training courses are conducted in collaboration with globally-renowned academia and organizations such as World Health Organization (WHO), International Diabetes Federation (IDF), International Working Group on the Diabetic Foot (IWGDF), and International Osteoporosis Foundation (IOF).

    As the Director and Chief Scientific Officer of the EMRI, Dr Larijani has been involved in:

    • Organizing comprehensive courses on diabetes management for physicians.
    • Organizing diabetic foot workshop for nurses and physician all across the country.
    • Supervising +150 thesis on different aspects of diabetes (including different postgraduate levels, i.e. Doctor of Medicine, Internal Medicine, Fellowship in Endocrinology, and PhD degrees).
    • +50 books edited or translated in different aspects of diabetes.
    • Publication of +800 articles on diabetes in peer-reviewed medical journals (national/international).
    • Establishment of diabetes virtual clinic.
    • +300 workshops, national seminars, and also international workshops on different aspect of diabetes in Endocrinology and Metabolism Research Institute.
    • More than +20 educational campaigns for children have been organized with cooperation of Charity Foundation for Special Diseases.
    • Establishment of Iranian Diabetes Academy. The Academy provides expert evidence at hearings, converses with governmental bodies, collaborates to establish national regulations, and develops position statements on diabetes issues. Furthermore, the Academy will make a platform for both national and international fundraising activities to strengthen research, research training and educational activities in the field of diabetes. More details about the academy are available via http://ida.http://ida.tums.ac.ir

    A.3. Activities on diabetes management

    • Developing Diabetes Roadmap in collaboration with the Ministry of Health.
    • Establishment of a system for registration of patients living with diabetes on a nationally inclusive database and provision of individualized health services to patients living with diabetes.
    • Designing an easy to access trilingual website for increasing public knowledge.
    • Representative of International Working Group on the Diabetic Foot in MENA Region.
    • Establishing a Diabetic Foot Care Specialty Ward in Dr Shariati Hospital, Tehran, Centre of Iran.
    • Establishing specialty and subspecialty diabetes, which is consisted of clinical, diagnostic, and research units and so far, the records of +32 000 patients have been proliferated in the EMRI's clinics. As a national model, the Ministry of Health and Medical Education (MoHME) is now encouraging medical universities to establish such infrastructures.
    • Establishment of the first virtual diabetes clinic in Iran which provides the opportunity for patients living with diabetes to have access to the most updated information on various aspects of diabetes remotely, such as: complications, management, and nutrition (please see: http://emri.tums.ac.ir/vclinic).
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    The Diabetes Centre (Pakistan)

    Website: https://thediabetescentre.org/

    Mission

    To be recognized as a global leader improving the lives of people with diabetes, irrespective of their ability to pay, through medical care, education, research, innovation and advocacy for cure and prevention of the disease.

    Description of work

    Provides quality diabetic care and health care services and medicines to all of the patients irrespective of their paying ability, as well as provide health literacy and advocacy to fight the growing menace of diabetes in Pakistan. TDC organizes integrated programmes and conferences for continuous medical education of health care providers.

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    The diaTribe Foundation, USA

    Website: https://diatribe.org/foundation/

    Mission

    The diaTribe Foundation was founded with a mission to improve the lives of people with diabetes, prediabetes and obesity, and to advocate for action.

    Description of work

    The diaTribe Foundation’s work in the diabetes field falls into three main categories: education, advocacy, and connecting. We aim to educate people with diabetes, health care providers, caregivers, and the public about general diabetes information, as well as information about diabetes-related complications, technology, medications, nutrition, managing lifestyle, and stigma through our diaTribe Learn publication, which receives over 3.5 million annual website page views and reaches over 325 000 subscribers to our weekly newsletter.

    In the advocacy space, we have 2 main programme areas: diaTribe Change and Stigma. As part of diaTribe Change, we write articles on the major systemic issues in the diabetes field and lead advocacy campaigns which often include writing letters to policy-makers and legislators.

    Stigma is our newest programme area, and we are committed to driving education, research, and media advocacy around ending diabetes stigma. Our latest project, an online stigma hub called dStigmatize, is focused on educating people who write, speak, or otherwise communicate about diabetes on what stigma is and why it is essential that we eliminate it. dStigmatize also provides resources to help combat diabetes stigma for journalists, media professionals, health care providers, marketing and communications teams, and educators.

    Our work on connecting encompasses our live education events that bring together panels of industry and health care experts to discuss educational topics and answer questions from their peers and people with diabetes. Each event has hundreds of attendees. We also host the dSeries Executive Innovation Lab, an annual conference that brings together key stakeholders in the diabetes ecosystem (leaders in industry, policy, research, non-profits, etc.) to identify and solve some of the most pressing challenges and root causes of the diabetes epidemic.

    Finally, our work on the Time in Range Coalition spans all three of our focus areas to help drive forward the research and regulatory work to make Time in Range an established key diabetes health metric. The coalition achieves this by fostering collective action between health care providers, people with diabetes, non-profit leaders, philanthropic foundations, and industry to achieve a common goal.

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    Theopathy Elderly Care Association (TECA), Botswana

    Website: N/A

    Mission

    Promoting healthy lifestyle and prevention/delay onset of complications in chronic conditions special emphasis on diabetes.

    Description of work

    N/A

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    The Sonia Nabeta Foundation, Inc., USA

    Website: https://www.sonianabetafoundation.org

    Mission

    The Sonia Nabeta Foundation (SNF) believes in an Africa where children with type 1 diabetes (T1D) have an equal chance at long, healthy, gainful and productive lives. SNF’s mission, therefore, is to reduce the hefty cost of treatment and to provide holistic health care and community support to children with T1D, aka “warriors” from low-income households in Africa.

    Description of work

    SNF works to reduce the hefty cost of treatment and to provide holistic health care and community support to children with T1D aka “warriors” from low-income households in African (Uganda and Ghana). For these underserved communities, SNF partners with the ministries of health, local and global partners to implement several programmes to move its mission forward.

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    The University of Calgary, Canada

    Website: https://www.ucalgary.ca/

    Mission

    TWe create a campus environment that inspires research, learning and community, enriches student experience, and advances sustainability.

    Description of work

    N/A

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    University of California San Francisco Health, USA

    Website: https://www.ucsfhealth.org/

    Mission


    Our mission — the reason we exist — is Caring, Healing, Teaching and Discovering.

    Description of work

    N/A

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    U

    Uganda Non Communicable Diseases Alliance

    Website: https://uncdaug.org/

    Mission

    To lead the Civil Society Organizations response against NCDs by placing people’s health at the centre of the national agenda through advocacy, empowering and inspiring the population.

    Description of work

    Mobilization of people living with NCDs and diabetes for meaningful involvement into activities that inform policy on diabetes and other NCDs

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    Université Numérique Francophone Mondiale (UNFM), France

    Website: https://www.unfm.org/unfm/

     

    Mission

    To offer the widest possible access to knowledge by putting free training online, mainly in French, accessible to professionals from all countries, in particular those working in developing countries.

    Description of work

    The UNFM contributes to the education and training of field workers, particularly in the fields of health, education, IT and management. This education and training use digital means (internet, satellite, etc.) and concern all French-speaking countries (and recently the English-speaking countries as well). Today, 12 training courses are available online free of charge for diabetes or related complications. It is addressed to different professional targets with a special focus on NCDs:

    • To extend the programme a low-speed broadcasting in addition to satellite broadcasts was made with a strong cooperation agreement between the UNFM and the RAFT (Réseau en Afrique Francophone pour la Télémédecine) to use their low-speed tools developed by the computer research services of the University Hospitals of Geneva (Unit of Pr Antoine Geissbuhler).
    • To add the partnership of “Be He@lthy Be Mobile” (BHBM) in Senegal, WHO/ITU programme.

     

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    University Hospitals of Geneva, Unit of Therapeutic Patient Education, Switzerland

    Website: https://www.hug.ch/en/therapeutic-patient-education

    Mission

    Provide therapeutic patient education for patients with chronic diseases, in particular diabetes, obesity, and associated conditions, in order to prevent complications.

    Description of work

    The unit makes it possible to integrate all the facets of fundamental, clinical and psycho-educational research. They are applied directly to patients in order to improve their quality of life and treatment adherence, and to reduce their complications. In this sense, the unit offers innovative multidisciplinary research unique in its diversity and clinical application. The teams have been working in the field of diabetology and obesity research for more than 25 years to better understand the mechanisms of resistance to weight loss today. Research carried out in the field of metabolism has thus made it possible to discover that we are not "equal in terms of calories" due to energy savings, a defect in the regulation of the autonomic nervous system and insulin resistance. This resistance to weight loss is also being studied to improve behaviour changes in the field of psychology, pedagogy and even in art therapy. Motivation to change behaviour is a major difficulty in the clinic, and the research carried out by the unit is also making it possible to innovate in new psycho-pedagogical approaches. Another aspect of research is the diabetic foot, in particular with the collaboration of EPFL Lausanne.

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    University Medical Center Utrecht, Netherlands

    Website: https://www.umcutrecht.nl/nl

    Mission

    At UMC Utrecht, we focus on health every day. In our view, all those who need our medical care are unique individuals with their own wants, needs and preferences. We work together with patients to attain their maximum health. With patient satisfaction as a prerequisite, patients can be assured of our outstanding medical quality and safety. We aim to conduct exceptional research on the international stage, which we then quickly translate into our own patient care and towards patient care elsewhere so that our care manifestly produces the best possible results.

    Description of work

    N/A

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    University of Melbourne, Australia

    Website: https://medicine.unimelb.edu.au/research/acadi/ and https://www.unimelb.edu.au/

    Mission

    Our purpose is to benefit society through the transformative impact of education and research.

    Description of work

    The Australian Centre for Accelerating Diabetes Innovations Research Centre (ACADI) aims to deliver novel interventions for timely diagnosis, prevention and treatment of diabetes and its complications. Our research and development platform, national training programme, and sustainable model will increase quality of life and life expectancy for all Australians living with diabetes and its complications. Furthermore, ACADI specifically addresses equity in diabetes related health care with targeted initiatives to ensure all Australians, regardless of their geographic location or cultural background, have equal access to innovative products and clinical trials.

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    University of Pretoria Diabetes Research Centre (UP Diabetes Research Centre), South Africa

    Website: N/A

    Mission

    The University of Pretoria Diabetes Research Centre strives to:

    1. Create an environment that enables and supports world-class transdisciplinary research in diabetes collaborating with various other departments, faculties and institutions.
    2. Catalyse and promote diabetes research and innovations through multidisciplinary collaborations and strategic partnerships.
    3. Translate new knowledge into improved diabetes care, management and prevention.
    4. Provide practical and up-to-date training for the management of diabetes to health care professionals.
    5. Advocate for sustainable, evidence-based, culturally sensitive and person-centred care for people with diabetes.

    Our vision is to be a nationally and internationally recognized leader in diabetes translational research, ultimately aspiring to better the lives of people living with diabetes.

    Description of work

    Launched in November 2020, the University of Pretoria Diabetes Research Centre is a multidisciplinary, interdepartmental and interfaculty initiative which aims to champion and promote optimal diabetes prevention and control at all levels of care through research, innovation and advocacy. The UP Diabetes Research Centre endeavours to deliver top quality scientific contributions as practical solutions to problems of diabetes prevention and control at national and/or regional level.

    Our main focus is research and advocacy. The UP Diabetes Research Centre is organized around clusters: diabetes in pregnancy, diabetes in primary care, hospital- based diabetes care, paediatric diabetes, technology in diabetes and lifestyle interventions in diabetes.

    The primary care cluster is running a number of projects including the Tshwane Insulin Project (TIP) which aims at improving diabetes management at the primary health care level with a focus on improving insulin use for people living with type 2 diabetes.

    The diabetes in pregnancy cluster is studying the prevalence of gestational diabetes, assessing the best approaches to screening, diagnosis and management in the local context, and evaluating novel management modalities (e.g. glucose monitoring, telemedicine, etc.). This cluster is also raising awareness of diabetes in pregnancy.

    In November 2021, we co-hosted the inaugural South African Diabetes Summit with the South African Diabetes Alliance. During the Summit, a Diabetes Charter was presented for the first time in South Africa. The UP Diabetes Research Centre supported this initiative as an organization that fights for the rights of people living with diabetes.

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    University of Pittsburgh, USA

    Website: https://www.pitt.edu/

    Mission

    We provide clinical care for patients with diabetes through our medical system, UPMC. Comprised of 20+ hospitals and at least 800 outpatient clinics, we also have large clinical and research divisions in endocrinology and paediatric endocrinology, both housed within the School of Medicine.

    Description of work

    To learn more about how we can get involved with efforts to improve the care of patients with diabetes around the world.

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    V

    Vanderbilt Diabetes Research Center, USA

    Website: https://www.vumc.org/vdrc/home

    Mission

    Diabetes research and patient care

    Description of work

    The Vanderbilt Diabetes Research and Training Center (DRTC) is a NIH-sponsored diabetes centre that facilitates the discovery, application, and translation of scientific knowledge to improve the lives of people with diabetes. Our investigators conduct basic, clinical, and translational research on the etiology, prevention, treatment, and complications of diabetes and obesity. The DRTC supports core facilities that enhance diabetes-related research and organizes an enrichment programme of seminars and small groups that create a dynamic and inclusive environment for the training of the next generation of scientists. We invite you to collaborate or interact with us as we work to reduce the burden of diabetes.

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    W

    World Diabetes Foundation (WDF), Denmark

    Website: https://www.worlddiabetesfoundation.org/

    Mission

    To alleviate human suffering related to diabetes and its complications among those in greatest need.

    Description of work

    World Diabetes Foundation (WDF) has since 2002 donated approximately US$ 10 million on average every year to projects and programmes in LMIC contexts with an aim to prevent and control diabetes.

    Over the past decade and in accordance with the global health agenda, WDF has increased its support to integrated NCD response, i.e. integrating diabetes care into hypertension/CVDs control area, TB programmes, or maternal care. In recent years, WDF has scaled up its grants and also participated more actively in global advocacy. Our engagement in the WHO Global Dialogue on Partnerships for Sustainable Financing of NCD Prevention and Control (2018) was a highlight.

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    World Heart Federation (WHF), Switzerland

    Website: https://world-heart-federation.org/

    Mission

    • Connect and lead the cardiovascular disease community.
    • Translate science into policy.
    • Stimulate and catalyse the exchange of knowledge.

    Description of work

    People with diabetes are 2 to 3 times more likely to develop a cardiovascular disease (CVD). Preventing CVDs among people living with diabetes became one of the main focuses of the World Heart Federation in 2018, wherein an expert writing group in partnership with the International Diabetes Federation (IDF) was assembled to develop the WHF roadmap for prevention of CVDs among people living with diabetes. The roadmap is a key reference document for anyone involved in the planning, organization, implementation and monitoring and evaluation of approaches related to CVDs prevention in people living with diabetes. It outlines a vision of an ideal pathway of care, potential roadblocks along this pathway, and proposed solutions, with examples from practice. The roadmap draws on the expertise of diabetes expert clinicians, researchers, implementation science experts and people with lived experience from around the world. It presents an integrated approach to patient care, involving the patient, health care system and health policy perspective. In an effort to implement the roadmap at the local level, the WHF has convened several roundtables on CVDs and diabetes, in Brazil, Saudi Arabia. China, Mexico and Sweden.

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    WoundPedia, Canada

    Website: https://woundpedia.com/

    Mission

    Our mission is to provide high-quality interprofessional wound care education and to improve patient-centred care and outcomes through knowledge mobilization initiatives.

    Description of work

    • Deliver the International Interprofessional Wound Care Course (IIWCC).
    • Deliver Project ECHO (Extensions for Community Healthcare Outcomes) Ontario Skin and Wound Care.
    • Promote global health initiatives that improve skin and wound care.
    • Facilitate liaisons and alliances with members of the skin and wound care communities nationally and internationally.
    • Promote standards and evidence for skin and wound care.
    • Establish accurate and actionable on data and measurement in wound care.
    • Ensure all WoundPedia initiatives are evidence-informed and updated as appropriate.
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    Wounds Canada/Plaies Canada

    Website: https://www.woundscanada.ca/

    Mission

    Wounds Canada is a charitable organization dedicated to the advancement of wound prevention and management.

    We accomplish this by advocating for a population health approach that promotes best practices to support persons at risk of or living with wounds, health decision makers and frontline clinicians.

    We develop and provide educational programmes and resources as well as support research to further advance this holistic, risk-based approach.

    We foster relationships with interested individuals and organizations to expand and sustain a robust wound community in Canada that also has mutually beneficial global connections.

    Our goal is to reduce the prevalence and incidence of wounds of all types and the negative consequences they bring – including patient suffering and wasted health care dollars.

    Description of work

    Wounds Canada is a Canadian nongovernmental organization focusing on the prevention and management of all types of wounds, including those resulting from diabetes complications.

    We offer evidence-based education, contribute to and disseminate research, advocate for high-quality patient care, and collaborate with other organizations to enhance wound care standards.

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    Y

    Youth and Women Opportunities in Uganda (YWOU)

    Website: N/A

    Mission

    YWOU is an innovative charitable NGO founded and led by volunteers in Uganda whose initiatives address health and well-being, NCDs, access to quality education, health, economic growth through agriculture, WASH, and women’s development. YWOU was established in 2014 to provide support to the weakest social groups such as Youth, AGYW, children, women, girls, sex workers, orphans and vulnerable children (OVCs), public health ambassadors (PHAs) and most at risk populations (MARPS). YWOU collaborates and networks with district health offices, VHTs, health centres and community structures such as schools, churches, mosques, markets and community-based development offices and in local communities to provide holistic community-based health services to the families and communities in need. There is an important focus on people who are living with HIV/AIDS, COVID-19, diabetes, hypertension, TB and malaria and other diseases such as mental health conditions.

    With the rising prevalence of NCDs in Uganda and especially in the most impoverished parts in Teso, YWOU is especially focused on improving the quality of lives of Ugandans and reducing disability or premature mortality caused by NCDs with focus on access to quality, sustainable and equitable services.

    Youth and Women for Opportunities Uganda (YWOU) is a community-based, non-profit organization in the Teso region of western Uganda. The organization was created to provide support for the weakest social groups in the region in an effort to release them from economic and social poverty and enable them to live responsible and fulfilled lives while having good health and educational opportunities. YWOU’s mission is to improve the livelihood of those living in the poorest communities through holistic training programmes, quality educational opportunities through scholarships and bursaries, life skills and vocational training, HIV/AIDS programmes, economic empowerment and family support, sports and recreation programmes, and fundamental human rights and advocacy. YWOU collaborates and networks with local communities, governments, families, and other stakeholders in rural areas to provide holistic community services to communities in need. YWOU initiatives address issues such as education, agriculture, agro-forestry, climate change, food security, clean water, sanitation and hygiene, poverty, and empowerment of women.

    Description of work

    • Access to care
    • Prevention
    • Advocacy

    Focus area(s):

    • type 2 diabetes
    • diabetes foot care
    • diabetes eye care
    • gestational diabetes
    • type 1 diabetes
    • TB and diabetes.

    YWOU proposes to implement community NCD health care plans/program to enhance the prevention, treatment, management and control of NCDs in Teso. This includes both urban and rural mix for prevention, management and control of NCDs in the context of the families and communities using outreach teams and to strengthen referral networks to local health facilities.

    Objective 1: To build capacity of health workers and lay persons/NCD-Corps for comprehensive management of diabetes and related NCDs at primary health level.

    Objective 2: To drive community-based awareness and education on diabetes and related NCDs through trained health workers, peer educators and lay persons/NCD-Corps.

    Objective 3: To implement integrated care and interventions with digital health for linkage to treatment, longitudinal monitoring, and reporting in identified clinics.

    Objective 4: To strengthen type 1 diabetes care, especially amongst school-aged children.

    Over 460 million people in the world are living with diabetes, a number which has tripled in the past 8 years and, without decisive action, will continue to rise. Diabetes is now among the top 10 causes of global deaths and a leading cause of stroke, cardiovascular and kidney diseases, blindness, oral diseases and lower-limb amputation. This places a heavy burden on individuals, families and economies, particularly in low- and middle-income countries like Uganda, where 79% of people live with diabetes.

    2021 marks the centenary of the discovery of insulin. Yet, tens of thousands of people with type 1 and type 2 diabetes who need insulin to survive cannot access or afford the items needed to measure their blood glucose (e.g. glucometers, test strips, lancets) or the needles and syringes needed to safely administer insulin.

    About half of all adults with T2D remain undiagnosed and 50% of people with type 2 diabetes don’t get the insulin they need, placing them at avoidable risk of debilitating and irreversible complications such as early death, limb amputations and sight loss since insulin is not the only scarce commodity.

    Diabetes is the only major NCD for which the risk of dying early is going up, rather than down. A high proportion of people in Teso who are admitted severely ill in hospital with COVID-19 have diabetes and other NCDs. The majority of people who have died from COVID-19 were living with underlying NCD conditions, most commonly hypertension, cardiovascular diseases or diabetes. People living with multiple chronic conditions have been found to be at significantly higher risk. The global COVID-19 pandemic disproportionately impacted people living with NCDs, due both to the links between COVID-19 and many NCDs and severe disruptions to timely diagnosis, treatment, care and support.

    Secondary data review of COVID-19 reports was done to gather information from various government departments, policy documents, data, gazetteers and reports. The data collected through the reports reviews and the secondary sources was analysed to enhance the understanding of the problems, gaps and constraint. It was found that people a growing, but underserved group, are living with multiple NCDs. Co-morbidity reportedly affects between 13–95% of people accessing health care in Teso.

    However, it is known that people living with one NCD are more likely to develop other NCDs, chiefly because of common risk factors and/or due to complications. The majority of people who have died from COVID-19 were living with underlying NCD conditions, most commonly hypertension, CVD or diabetes. People living with multiple chronic conditions have been found to be at significantly higher risk. Co-morbidity, where a person lives with one or more disease or condition at the same time, is increasingly becoming the norm globally, and the number of people living with more than one NCD has steadily increased over the past 20 years. The pandemic has demonstrated the interconnections between NCDs and communicable diseases, and a need for integrated responses and solutions for health security and health systems resilience, both in terms of recovery and future preparedness. Two sides of the same coin, diabetes and hypertension are closely interlinked, due to shared risk factors including obesity, vascular inflammation, and high cholesterol. This means that people living with diabetes are also likely to have hypertension and vice versa. Heart disease complications are also common for people living with diabetes and/or hypertension, and are related to microvascular disease (such as chronic kidney, nerve, and eye disease) and macrovascular disease (such as stroke and diseases of vessels in the heart and lower limbs). Comorbidities reveal underlying inequalities. Comorbidities highlight inequalities.

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